Evidence map›Paper›PMID 39496473›Full record

SynthesisBMJ quality & safety2025

Experiences with diagnostic delay among underserved racial and ethnic patients: a systematic review of the qualitative literature.

Elena Faugno, Alison A Galbraith, Kathleen Walsh, Paul J Maglione, Jocelyn R Farmer, Mei-Sing Ong

Abstract readSystematic Review
In one paragraph

Synthesis in BMJ quality & safety, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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  18. Intersectionality and Long Covid: Understanding the Lived Experiences of Ethnic Minority Groups in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Elena FaugnoDepartment of Population Medicine, Harvard Pilgrim Health Care Institute, Boston, Massachusetts, USA elena_faugno@hphci.harvard.edu.ORCID http://orcid.org/0009-0001-5778-8316
Alison A GalbraithBoston University Chobanian & Avedisian School of Medicine, Boston, Massachusetts, USA.
Kathleen WalshBoston Children's Hospital, Boston, MA, USA.ORCID http://orcid.org/0000-0002-3516-5265
Paul J MaglioneBoston University Chobanian & Avedisian School of Medicine, Boston, Massachusetts, USA.
Jocelyn R FarmerBeth Israel Lahey Health, Burlington, Massachusetts, USA.
Mei-Sing OngDepartment of Population Medicine, Harvard Pilgrim Health Care Institute, Boston, Massachusetts, USA.

Funding

Underdiagnosis of primary immunodeficiency disorders: Recognize and EducateR01MD017816 · NIMHD · HARVARD PILGRIM HEALTH CARE, INC. · PI Jocelyn R Farmer, Mei-Sing Ong · 2022 to 2026
$3.2M
NIMHD NIH HHS R01 MD017816
6 · The paper itself

Abstract

objectiveDiagnostic delay is a pervasive patient safety problem that disproportionately affects historically underserved populations. We aim to systematically examine and synthesise published qualitative studies on patient experiences with diagnostic delay among historically underserved racial and ethnic populations. DATA SOURCES: PubMed. ELIGIBILITY CRITERIA: Primary qualitative studies detailing patient or caregiver-reported accounts of delay in the diagnosis of a disease among underserved racial and ethnic populations; conducted in the USA; published in English in a peer-reviewed journal (years 2012-2022); study cohort composed of >50% non-white racial and ethnic populations. DATA ANALYSIS: Primary outcomes were barriers to timely diagnosis of a disease. Screening and thematic abstraction were performed independently by two investigators, and data were synthesised using the 'Model of Pathways to Treatment' conceptual framework.

resultsSixteen studies from multiple clinical domains were included. Barriers to timely diagnosis emerged at the socioeconomic and sociocultural level (low health literacy, distrust in healthcare systems, healthcare avoidance, cultural and linguistic barriers), provider level (cognitive biases, breakdown in patient-provider communication, lack of disease knowledge) and health systems level (inequity in organisational health literacy, administrative barriers, fragmented care environment and a lack of organisational cultural competence). None of the existing studies explored diagnostic disparities among Asian Americans/Pacific Islanders, and few examined chronic conditions known to disproportionately affect historically underserved populations. DISCUSSION: Historically underserved racial and ethnic patients encountered many challenges throughout their diagnostic journey. Systemic strategies are needed to address and prevent diagnostic disparities.

Indexed as

Delayed DiagnosisEthnicityRacial GroupsVulnerable PopulationsHealthcare DisparitiesHealth Services AccessibilityHumansQualitative ResearchUnited StatesDiagnostic errorsHealthcare quality improvementPatient safetyQualitative research

Identifiers

PMID39496473
PMCPMC11839380

What Socratic holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.