Evidence map›Paper›PMID 39603997›Full record

ArticleJournal of clinical nursing2025

Using Collective Intelligence to Develop Design Requirements for a Complex Intervention for Advance Care Planning in the Community.

Monika Pilch, Catherine B Hayes, Owen Harney, Frank Doyle, Stephen Thomas, Victoria Cooper Lunt, Michael Hogan

Abstract read
In one paragraph

Article in Journal of clinical nursing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Monika PilchCentre for Health Policy and Management, School of Medicine, Trinity College Dublin, Dublin, Ireland.ORCID 0000-0002-0610-0593
Catherine B HayesPublic Health & Primary Care, School of Medicine, Trinity College Dublin, Dublin, Ireland.
Owen HarneySchool of Psychology, University of Galway, Galway, Ireland.
Frank DoyleDepartment of Health Psychology, School of Population Health, Royal College of Surgeons in Ireland, Dublin, Ireland.
Stephen ThomasCentre for Health Policy and Management, School of Medicine, Trinity College Dublin, Dublin, Ireland.
Victoria Cooper LuntPsycho-Oncology Service, Beaumont Hospital, Dublin, Ireland.
Michael HoganSchool of Psychology, University of Galway, Galway, Ireland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEngaging people in advance care planning is a challenging systemic problem that requires a social innovation approach and a conceptual framework to guide behavioural and social change efforts.

aimTo identify stakeholders' perspectives on barriers to advance care planning engagement, options for overcoming these barriers, and user needs. The findings will inform the design of a health behaviour change intervention for engaging older adults (50+) in advance care planning.

designTo advance co-production and intervention design goals, the study used collective intelligence and scenario-based design methods.

methodsFollowing a systematic stakeholder analysis, 22 participants were recruited to three online collective intelligence sessions. The socioecological perspective informed framing of integrated findings and specifying factors at the individual, interpersonal, service, and system levels.

resultsIdentified barriers (n = 109) were grouped into seven categories: (i) Psychological, (ii) Advance Care Planning Literacy, (iii) Interpersonal and Interprofessional, (iv) Service-Related, (v) Resources and Supports, (vi) Advance Care Planning Process and Methods, (vii) Cultural and Societal. Stakeholders generated 222 options for overcoming these barriers and specified 230 service user needs. The need to change perceptions of advance care planning, increase psychological readiness, and target advance care planning literacy was highlighted (individual-level). Timely, focused, and meaningful interaction between the key ACP actors must be facilitated using creative strategies (interpersonal-level). Need- and value-based services, including high quality resources, support systems, and infrastructure, should be co-designed (service-level). Cultural and societal transformation is required (system-level).

conclusionFindings integration offered insight into the complexity of the design context and problem situation and identified directions for context-specific advance care planning intervention development. The use of design thinking methodologies is recommended for the next phase of complex intervention development. IMPLICATIONS: The study presents a roadmap of actions required from policy-makers, practitioners, and researchers to ensure the design of adequate advance care planning interventions. REPORTING

methodQuality of reporting was assured by adherence to Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines (International Journal for Quality in Health Care, 19, 2007, 349). PATIENT OR PUBLIC CONTRIBUTION: Patient and public representatives participated in the collective intelligence sessions. Members of the All Ireland Institute of Hospice and Palliative Care Voices4Care facilitated that process. Findings from the first CI session (involving patients and caregivers) informed the content, format, and methods used in subsequent CI sessions.

Indexed as

Advance Care PlanningHumansadvance care planning behaviourcollective intelligencecomplex interventiondesign thinkinginnovationprogramme development

Identifiers

PMID39603997
PMCPMC11655436

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.