Evidence map›Paper›PMID 39619068›Full record

ArticleJournal of clinical and translational science2024

Return of individual research results to participants with and at risk for Parkinson's disease.

Samantha E Lettenberger, Emily A Hartman, Kali Tam, Peggy Auinger, Meghan E Pawlik, Renee Wilson, Elizabeth T Banda, Blanca Valdovinos, Daniel Kinel, Roy N Alcalay and 5 more

Abstract read
In one paragraph

Article in Journal of clinical and translational science, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Samantha E LettenbergerCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Emily A HartmanCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Kali TamUniversity of Rochester, Rochester, NY, USA.
Peggy AuingerCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Meghan E PawlikCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Renee WilsonCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Elizabeth T BandaCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Blanca ValdovinosDepartment of Neurology, University of Rochester Medical Center, Rochester, NY, USA.
Daniel KinelCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Roy N AlcalayDepartment of Neurology, Tel Aviv Sourasky Medical Center, Tel Aviv, Israel.
E Ray DorseyCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Lucy Norcliffe-Kaufmann23andMe, Inc., Sunnyvale, CA, USA.
Saloni SharmaCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Robert G HollowayDepartment of Neurology, University of Rochester Medical Center, Rochester, NY, USA.
Ruth B SchneiderCenter for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.ORCID https://orcid.org/0000-0001-8094-4041

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In a prospective, remote natural history study of 277 individuals with (60) and genetically at risk for (217) Parkinson's disease (PD), we examined interest in the return of individual research results (IRRs) and compared characteristics of those who opted for versus against the return of IRRs. Most (

Indexed as

Lrrk2Parkinson’s diseaseresearch disseminationresearch ethicsreturn of resultstelemedicine

Identifiers

PMID39619068
PMCPMC11604507

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.