Evidence map›Paper›PMID 39663199›Full record

ArticleInternational journal of geriatric psychiatry2024

Assessment of Dementia in Minority Ethnic Groups in Europe: A 14-Year Follow-Up Survey.

T Rune Nielsen, Alexandre de Mendonça, Lutz Frölich, Sebastiaan Engelborghs, Dianne Gove, Daphné Lamirel, Clara Calia, Gunhild Waldemar

Abstract readMulticenter Study
In one paragraph

Article in International journal of geriatric psychiatry, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Culturally and linguistically diverse patients in an Italian memory clinic: lessons learned from the ImmiDem project.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2026
    Observational
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

T Rune NielsenDepartment of Neurology, Danish Dementia Research Centre, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0002-8128-2294
Alexandre de MendonçaFaculty of Medicine, University of Lisbon, Lisbon, Portugal.ORCID 0000-0002-0488-1453
Lutz FrölichDepartment of Geriatric Psychiatry, Zentralinstitut für Seelische Gesundheit, University of Heidelberg, Mannheim, Germany.
Sebastiaan EngelborghsDepartment of Biomedical Science, Reference Centre for Biological Markers of Dementia (BIODEM), University of Antwerp, Antwerp, Belgium.
Dianne GoveAlzheimer Europe, Senningerberg, Luxembourg.ORCID 0000-0002-4281-3494
Daphné LamirelAlzheimer Europe, Senningerberg, Luxembourg.
Clara CaliaSchool of Health in Social Science, University of Edinburgh, Edinburgh, UK.
Gunhild WaldemarDepartment of Neurology, Danish Dementia Research Centre, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.

Funding

Danish Ministry of HealthVelux Fonden 00042578
6 · The paper itself

Abstract

objectivesThere is no European consensus on good clinical practice for timely diagnosis and culturally appropriate care of people with dementia from minority ethnic groups. Despite significant advances in culture-sensitive dementia diagnostics, little is known about how this has been implemented in clinical practice. The aims of this follow-up survey were to explore current practices for assessing dementia in patients from minority ethnic groups in Europe and to determine whether barriers in access to specialized dementia services have changed during the last 14 years.

methodsA cross-sectional online survey was conducted in the European Alzheimer's Disease Consortium (EADC) in June 2023. The survey utilized questionnaires from a previous EADC survey from 2009 and focused on different points in the clinical assessment of dementia in patients from minority ethnic groups.

resultsThirty-three centers from 15 countries participated in the survey, of which 21 were the same as in the 2009 survey. Patients from minority ethnic groups were seen on a regular basis in 91% of these centers, which was a significant increase compared to 2009 (69%, p = 0.04). Despite perceived clinical expertise increasing, implemented strategies for bypassing cultural and linguistic barriers were sparse and communication problems and lack of adequate assessment tools continued to be the main perceived barriers in diagnostic assessment of dementia in minority ethnic groups.

conclusionsPatients from minority ethnic groups are increasingly being referred for diagnostic assessment of dementia in Europe. Despite some improvements, diagnostic challenges generally remained the same as in 2009 and there is a continuous need to implement effective cross-cultural communication and assessment practices.

Indexed as

DementiaAgedCross-Sectional StudiesEthnic and Racial MinoritiesEuropeFemaleFollow-Up StudiesHealth Services AccessibilityHumansMaleSurveys and Questionnairesassessmentdementiadiagnosisinequalitiesminority ethnic groupsquestionnairesurvey

Identifiers

PMID39663199
PMCPMC11634820

What Socratic holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.