Evidence map›Paper›PMID 39725938›Full record

ArticleBMC palliative care2024

Australian Palliative Care Outcome Collaboration (PCOC) phases: cross cultural adaptation and psychometric validation for Polish palliative settings.

Katarzyna Wilk-Lelito, Anna Białoń-Janusz, Magdalena Kowalczyk, Elżbieta Wesołek, Tomasz Grądalski

Abstract read
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Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

5 authors.

Katarzyna Wilk-LelitoSt Lazarus Hospice, Fatimska 17, 31-831, Kraków, Poland.ORCID http://orcid.org/0009-0007-2183-1830
Anna Białoń-JanuszChair of Palliative Medicine Andrzej Frycz Modrzewski Krakow University, Kraków, Poland.ORCID http://orcid.org/0000-0003-2118-3304
Magdalena KowalczykSt Lazarus Hospice, Fatimska 17, 31-831, Kraków, Poland.ORCID http://orcid.org/0009-0007-1369-1188
Elżbieta WesołekChair of Palliative Medicine Andrzej Frycz Modrzewski Krakow University, Kraków, Poland.ORCID http://orcid.org/0000-0002-4114-2932
Tomasz GrądalskiChair of Palliative Medicine Andrzej Frycz Modrzewski Krakow University, Kraków, Poland. tomgr@mp.pl.ORCID http://orcid.org/0000-0003-3705-3846

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMeasuring palliative care quality requires the application of evaluation methods to compare clinically meaningful groups of patients across different settings. Such protocols are currently lacking in Poland. The Australian Palliative Care Outcome Collaboration (PCOC) concept of Palliative phases precisely defines patients, enables episodes of care extraction for benchmarking and further assessment of service delivery. The present study is aimed at developing cross-cultural adaptation and psychometric validation for a Polish translation of Palliative phases.

methodsForward and backward translation was performed to obtain a Polish draft version regarding definitions of the PCOC phases. The draft was then subjected to linguistic and graphical transformations in the process of cognitive interviewing. The acceptability of the Polish version was assessed based on staff perceptions of fit, ease of assignment and familiarity with the patient's and family's situation. Finally, cross-sectional analysis was conducted among 313 hospice and home-care palliative patients. The attending doctor and nurse independently evaluated the same patients using the Polish version of the PCOC phases to establish inter-rater reliability values. Then, to determine its construct validity, the PCOC indicators were referred to patients' prognosis, functioning level and PALCOM scale scores.

resultsA Polish draft version of the PCOC phases was prepared. Seven of the 13 interviewees reported problems with comprehending this proposal. This prompted changes being made to linguistic and graphical aspects of the tool. The majority of respondents preferred the final graphical scheme of phases, prepared after round-two of interviews. Scheme application acceptability was confirmed in a practical trial. The respondents' overall conviction regarding degree of fit and assignment ease was high. Seventy percent of PCOC phase assignments was in agreement, and a moderate level or inter-rater reliability was obtained (kappa 0.573). The highest proportion of totally bed-bound patients with the shortest survival prognosis was observed for the terminal phase, while the highest complexity of palliative care needs was noted for the unstable one.

conclusionsThe PCOC phases tool appears to be a valuable resource for specialists in palliative care settings to support audit measures. Practical training is recommended prior to its implementation in routine practice.

Indexed as

Palliative CarePsychometricsAdultAgedAged, 80 and overAustraliaCross-Cultural ComparisonCross-Sectional StudiesFemaleHumansMaleMiddle AgedOutcome Assessment, Health CarePolandReproducibility of ResultsSurveys and QuestionnairesCognitive interviewingOutcome measurementPalliative carePalliative care phasesQuality of healthcare

Identifiers

PMID39725938
PMCPMC11674211

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.