Evidence mapPaperPMID 39809548Full record

SynthesisColorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland2025

Lived experience of pilonidal sinus disease: Systematic review and meta-ethnography.

Kelsey Aimar, Daniel M Baker, Elizabeth Li, Matthew J Lee

Abstract readSystematic Review
In one paragraph

Synthesis in Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Lived experience of pilonidal sinus disease: Systematic review and meta-ethnography.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2025
    Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Kelsey AimarDepartment of Colorectal Surgery, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.ORCID 0000-0003-1701-935X
Daniel M BakerLeeds Teaching Hospitals NHS Trust, Leeds, UK.ORCID 0000-0002-3708-790X
Elizabeth LiUniversity of Birmingham, Birmingham, UK.ORCID 0000-0001-5961-2894
Matthew J LeeDepartment of Colorectal Surgery, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.ORCID 0000-0001-9971-1635

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimPilonidal sinus disease (PSD) poses significant treatment challenges due to a lack of consensus on the diverse range of surgical approaches routinely employed, prompting a renewed focus on the patient experience. The aim of this study was to explore the lived experience of patients with PSD to better inform future person-centred treatment.

methodA systematic review was performed to identify papers reporting qualitative studies on the lived experience of PSD. The MEDLINE, EMBASE and CINAHL databases were searched, using a predefined search strategy. Studies were dual screened at each stage, with conflicts resolved by a third reviewer. Analytical frameworks were extracted, along with supporting quotes. A meta-ethnographic approach was used to systemically compare and synthesize frameworks in line with the eMERGe meta-ethnography protocol. The study was registered on PROSPERO (CRD42024495608).

resultsFour full texts covering three studies were included. Three key themes emerged: (1) disruption to activities of daily living; (2) impact on psychological well-being; (3) navigating healthcare. Reduction of physical activity was patient-led, owing to fears of exacerbating symptoms and wound complications. PSD had a complex influence on self-perception and emotional state, leading to changed relationships with others. This was largely driven by the forced reliance on others for wound care. The final theme highlighted concerns regarding unexpected disease course and outcomes stemming from a lack of patient awareness of PSD.

conclusionThis study informs a more sophisticated understanding of the experience of individuals living with PSD and has identified recommendations that should guide future clinical practice and research.

Indexed as

Activities of Daily LivingPilonidal SinusAdultAnthropology, CulturalExerciseFemaleHumansMaleMiddle AgedQualitative ResearchQuality of Lifepilonidal diseaseproctologyqualitative researchsystematic review

Identifiers

PMID39809548
PMCPMC11732642

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.