Evidence mapPaperPMID 39851053Full record

ArticleInquiry : a journal of medical care organization, provision and financing

Acceptability and Future Considerations for Telegenetic Counseling After the COVID Pandemic: Interviews with Genetic Counselors, Clinicians, and Patients.

Meghan C Martinez, Nina Szwerinski, Su-Ying Liang, Sharon Chan, Monique de Bruin, Cheryl D Stults

Erratum issuedAbstract read
In one paragraph

Article in Inquiry : a journal of medical care organization, provision and financing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Review
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors.

Meghan C MartinezPalo Alto Medical Foundation Research Institute and Center for Health Systems Research, Sutter Health, Palo Alto, CA, USA.ORCID 0000-0003-1967-1018
Nina SzwerinskiPalo Alto Medical Foundation Research Institute and Center for Health Systems Research, Sutter Health, Palo Alto, CA, USA.ORCID 0009-0000-9829-7428
Su-Ying LiangPalo Alto Medical Foundation Research Institute and Center for Health Systems Research, Sutter Health, Palo Alto, CA, USA.
Sharon ChanDirector of Genetic Counseling, Bay Medical Foundation, Sutter Health, Sunnyvale, CA, USA.
Monique de BruinDepartment of Oncology, Sutter Health, Sunnyvale, CA, USA.
Cheryl D StultsPalo Alto Medical Foundation Research Institute and Center for Health Systems Research, Sutter Health, Palo Alto, CA, USA.ORCID 0000-0001-7958-1511

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

While telegenetic counseling has increased substantially since the start of the COVID-19 pandemic, previous studies reported concerns around building rapport, nonverbal communication, and the patient-counselor relationship. This qualitative evaluation elicited feedback from genetic counselors, referring clinicians, and patients from a single healthcare organization to understand the user-driven reasons for overall satisfaction and experience. We conducted 22 in-depth, semi-structured interviews with participants from all 3 groups between February 2022 and February 2023. Interview recordings were transcribed and analyzed using a pragmatic thematic approach. Participants across all groups felt the style and content of the genetic counseling visit lent itself perfectly to telegenetics specifically because of no physical exam component. Most patient and counselor participants expressed having the genetic counseling over phone or video had no impact on the patient-counselor relationship or the amount of trust and emotional connection they were able to achieve remotely. Preference for visit type can be influenced by in-person masking requirements impeding full facial expressions or expressing strong emotions over phone. All respondents expressed strong support for all modalities going forward. Counselors with broad experience across platforms should be the focus of future recruitment as should patient education around the nature of the genetic counseling visit and the accuracy of various testing options. Telegenetic programs should consider perspectives from all 3 groups to ensure that specific needs of each are addressed.

Indexed as

CounselorsCOVID-19Genetic CounselingTelemedicineAdultFemaleHumansInterviews as TopicMaleMiddle AgedPandemicsQualitative ResearchSARS-CoV-2genetic counselinginterviewtelemedicine

Identifiers

PMID39851053
PMCPMC11758521

What Socratic holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.