Evidence map›Paper›PMID 39934366›Full record

ArticleNPJ digital medicine2025

Implementation report on pioneering federated data access for the German National Emergency Department Data Registry.

Jonas Bienzeisler, Alexander Kombeiz, Saskia Ehrentreich, Ronny Otto, Wiebke Schirrmeister, Marco Pegoraro, Dominik Brammen, Behrus Puladi, Rainer Röhrig, Raphael W Majeed

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in NPJ digital medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Observational
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Jonas BienzeislerInstitute of Medical Informatics, Medical Faculty of the RWTH Aachen University, Aachen, Germany. jbienzeisler@ukaachen.de.
Alexander KombeizInstitute of Medical Informatics, Medical Faculty of the RWTH Aachen University, Aachen, Germany.
Saskia EhrentreichDepartment of Trauma Surgery, Otto von Guericke University, Magdeburg, Germany.
Ronny OttoDepartment of Trauma Surgery, Otto von Guericke University, Magdeburg, Germany.
Wiebke SchirrmeisterDepartment of Trauma Surgery, Otto von Guericke University, Magdeburg, Germany.
Marco PegoraroChair of Process and Data Science (PADS), Department of Computer Science, RWTH Aachen University, Aachen, Germany.
Dominik BrammenDepartment of Trauma Surgery, Otto von Guericke University, Magdeburg, Germany.
Behrus PuladiInstitute of Medical Informatics, Medical Faculty of the RWTH Aachen University, Aachen, Germany.
Rainer RöhrigInstitute of Medical Informatics, Medical Faculty of the RWTH Aachen University, Aachen, Germany.
Raphael W MajeedInstitute of Medical Informatics, Medical Faculty of the RWTH Aachen University, Aachen, Germany.

Funding

Bundesministerium für Bildung und Forschung 01KX1319A-FBundesministerium für Bildung und Forschung 01KX2121
6 · The paper itself

Abstract

Continuous access to electronic health records will fuel the digital transformation of medicine. For data-sharing initiatives, the challenge lies in ensuring data access aligns with the interests of data holders. Federated data access authorization, where data remains controlled locally, may offer a solution to balance these interests. This paper reports on a digital health implementation of the federated data access authorization system used in the German National Emergency Department Data Registry. Using data from 2017 to 2024, we analyzed the system's effectiveness in managing data access in a nationwide research network of 58 emergency departments. Facilitating access to more than 7.9 million records, 75% of data access queries were authorized within 15 days. The system also supports periodic queries, enabling recurring real-time access. Query volumes grew from 15 to over 23,000 by 2024, with completion rates of 86%. The system may thus serve as a blueprint for data-sharing initiatives worldwide.

Identifiers

PMID39934366
PMCPMC11814142

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.