Evidence map›Paper›PMID 40011976›Full record

ArticleSystematic reviews2025

Caregiver experiences and needs in pediatric rheumatic disease: a mixed-methods systematic review protocol.

Yuxuan Xiang, Ru Ding, Yuan Bixia, Jing Wu, Yongmei Lu, Xiangwei Yang

Abstract read
In one paragraph

Article in Systematic reviews, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Yuxuan XiangNursing Department, The First Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangzhou, China.
Ru DingSchool of Nursing, Guangzhou University of Chinese Medicine, Guangzhou, China.
Yuan BixiaSchool of Nursing, Guangzhou University of Chinese Medicine, Guangzhou, China.
Jing WuSchool of Nursing, Guangzhou University of Chinese Medicine, Guangzhou, China.
Yongmei LuSchool of Nursing, Guangzhou University of Chinese Medicine, Guangzhou, China.
Xiangwei YangNursing Department, The First Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangzhou, China. 1327758056@qq.com.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionUnderstanding the genuine experiences and requirements of caregivers and implementing targeted interventions can have a positive impact on the physical and mental well-being of caregivers with children diagnosed with rheumatic diseases, ultimately reducing their burden and enhancing their quality of life. While there has been a gradual increase in research in this area in recent years, there remains a gap in the evidence that comprehensively and systematically reflects the actual experiences and needs of caregivers. We will employ a mixed-methods approach to evaluate the real-life experiences and requirements of caregivers for children diagnosed with rheumatic diseases to provide insights for both research and clinical interventions. METHODS AND ANALYSIS: All types of studies (quantitative, qualitative, and mixed-methods) involving caregivers of children aged 0 to 18 with rheumatic diseases will be included. We will conduct a comprehensive search across multiple databases, including MEDLINE (PubMed), Embase (Ovid), PsycINFO (Ovid), CINAHL (EBSCO), Cochrane Central Register of Controlled Trials (CENTRAL), CNKI, WanFang, and VIP, as well as the grey literature, to identify primary studies published in either English or Chinese since 2000. Two independent reviewers will conduct the selection process and cross-check the data extraction. The focus of interest will be on understanding the experiences and needs of caregivers for pediatric rheumatic disease patients. In our systematic review, we will employ the 2018 version of the Mixed Methods Assessment Tool (MMAT) to evaluate study quality, and we will apply a convergent integration approach to synthesize the data. ETHICS AND DISSEMINATION: Ethical approval is not needed, as no primary data will be collected. The results will be made available through a peer-reviewed publication. SYSTEMATIC REVIEW REGISTRATION: PROSPERO 42023465302.

Indexed as

CaregiversQuality of LifeRheumatic DiseasesAdolescentChildHumansResearch DesignSystematic Reviews as TopicCaregiversChildExperiencesHealth services needs and demandRheumatic diseases

Identifiers

PMID40011976
PMCPMC11863848

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.