Evidence map›Paper›PMID 40080377›Full record

ArticleJournal of racial and ethnic health disparities2026

Global Insights on the Involvement of Ethnic Minority Populations in Health and Social Care Research Priority Setting: A Systematic Scoping Review.

Winifred Ekezie, Shabana Cassambai, Ffion Curtis, Barbara Czyznikowska, Lauren L O'Mahoney, Andrew Willis, Shavez Jeffers, Ruksar Abdala, Ayesha Butt, Yogini Chudasama and 2 more

Abstract readScoping Review
In one paragraph

Article in Journal of racial and ethnic health disparities, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Winifred EkezieNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK. wce2@leicester.ac.uk.ORCID 0000-0001-6622-0784
Shabana CassambaiNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK.
Ffion CurtisNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK.
Barbara CzyznikowskaDiabetes Research Centre, University of Leicester, Leicester, UK.
Lauren L O'MahoneyNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK.
Andrew WillisNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK.
Shavez JeffersNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK.
Ruksar AbdalaNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK.
Ayesha ButtNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK.
Yogini ChudasamaDiabetes Research Centre, University of Leicester, Leicester, UK.
Kamlesh KhuntiNational Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK.
Azhar FarooqiEast Midlands Regional Research Delivery Network (EM RRDN) NIHR, Leicester, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundRepresenting all population groups in health and social care research is essential for generating research relevant to decision making in everyday clinical and social healthcare policy and practice. Conducting research that is relevant to all, starts with ensuring equitable representation in research priority selection. This scoping review aimed to identify evidence of published and good practices in health and social care research priority-setting activities, which included people from ethnic minority backgrounds.

methodsThe search was conducted using MEDLINE, CINAHL, Cochrane Library, PsycINFO, and Scopus databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) guideline. Studies that reported including ethnic minority community members in health and social care research priority setting from 2010 were considered. The research priority processes were evaluated using a checklist of good practices in research priority settings.

findingsForty-seven articles representing 12 countries and various health topics were included. Group discussion was the most common approach for conducting the research priority setting activities. No study addressed all 20 recommended research priority-setting good practice principles. Most studies provided sufficient information about the context of the priority-setting exercise. Examples of good practices included community advisory boards, local approaches to health research, and multi-disciplinary steering groups.

conclusionRepresentation of ethnic minority populations' involvement in research across different countries and broader health and social care areas is limited. Recommendations to address these challenges are presented and could help inform researchers, funders, and policymakers to understand what health and social care research topics are prioritised by ethnic minority communities.

Indexed as

EthnicityHealth PrioritiesHealth Services ResearchMinority GroupsHumansEthnicity and raceEthnic minoritiesHealth researchResearch prioritiesScoping reviewSocial care

Identifiers

PMID40080377
PMCPMC13157404

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.