Evidence map›Paper›PMID 40084683›Full record

ArticleEthics & human research

Expectations, Tensions, and Brokerage: A Discourse Analysis of Community Engagement with Health Research in South Africa.

Sonja Klingberg, Catherine E Draper

Abstract read
In one paragraph

Article in Ethics & human research. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Sonja KlingbergPostdoctoral researcher at SAMRC (South African Medical Research Council)/Wits Developmental Pathways for Health Research Unit in the Department of Paediatrics in the Faculty of Health Sciences at the School of Clinical Medicine at the University of the Witwatersrand.
Catherine E DraperAssociate professor at SAMRC/Wits Developmental Pathways for Health Research Unit in the Department of Paediatrics in the Faculty of Health Sciences at the School of Clinical Medicine at the University of the Witwatersrand.

Funding

Kone Foundation (Koneen Säätiö) 201901846Kone Foundation (Koneen Säätiö) 202105895
6 · The paper itself

Abstract

Research is increasingly claimed to be done in collaboration with communities, but community members may have entirely different expectations of engagement and research participation than what typically follows the logic of academia. In South Africa, intersecting inequalities further complicate relationships with communities and stakeholders. To understand how different actors view and construct the relationships between academic institutions and communities, we undertook a multiperspective discourse analysis. We conducted 11 in-depth interviews with 12 participants categorized as researchers, community representatives, and community members. These interviews reflect three interconnected discourses: expectations, tensions, and brokerage. Expectations pattern intergroup dynamics, such as community members' expectations of research benefits, while tensions primarily capture challenging relationships between different research actors. Our analysis also illustrates how, in the absence of comprehensive institutional support, community engagement relies on brokerage by community representatives, and how this reliance disproportionately burdens them. There is a need to lessen this ethical burden and invite community input without also burdening community members and representatives with the challenges of academia. Our findings also have wider relevance for community-based health research because engagement practices are often hindered by institutional and structural factors.

Indexed as

Community-Based Participatory ResearchCommunity ParticipationAdultFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchResearch PersonnelSouth Africacommunity‐based health researchcommunity engagementdiscourse analysishealth researchinequalityresearch ethicsSouth Africa

Identifiers

PMID40084683
PMCPMC11915781

What Socratic holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.