Evidence map›Paper›PMID 40090431›Full record

ArticleJournal of biomedical informatics2025

Tentative renderings: Describing local data infrastructures that support the implementation and evaluation of national evaluation Initiatives.

Jennifer Van Tiem, Nicole L Johnson, Erin Balkenende, DeShauna Jones, Julia E Friberg Walhof, Emily E Chasco, Jane Moeckli, Kenda S Steffensmeier, Melissa J A Steffen, Kanika Arora and 2 more

Abstract read
In one paragraph

Article in Journal of biomedical informatics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Jennifer Van TiemCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Veterans Rural Health Resource Center-Iowa City (VRHRC-Iowa City), VA Office of Rural Health, Iowa City, IA, United States; Department of Family and Community Medicine, Carver College of Medicine, University of Iowa, Iowa City, IA, United States. Electronic address: Jennifer.VanTiem@va.gov.
Nicole L JohnsonCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Veterans Rural Health Resource Center-Iowa City (VRHRC-Iowa City), VA Office of Rural Health, Iowa City, IA, United States.
Erin BalkenendeCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Institute for Clinical and Translational Science, University of Iowa, Iowa City, IA, United States.
DeShauna JonesCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Division of General Internal Medicine, Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, IA, United States.
Julia E Friberg WalhofCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Veterans Rural Health Resource Center-Iowa City (VRHRC-Iowa City), VA Office of Rural Health, Iowa City, IA, United States.
Emily E ChascoCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Division of General Internal Medicine, Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, IA, United States.
Jane MoeckliCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Veterans Rural Health Resource Center-Iowa City (VRHRC-Iowa City), VA Office of Rural Health, Iowa City, IA, United States.
Kenda S SteffensmeierCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Veterans Rural Health Resource Center-Iowa City (VRHRC-Iowa City), VA Office of Rural Health, Iowa City, IA, United States.
Melissa J A SteffenCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Veterans Rural Health Resource Center-Iowa City (VRHRC-Iowa City), VA Office of Rural Health, Iowa City, IA, United States.
Kanika AroraDepartment of Health Management and Policy, College of Public Health, University of Iowa, IA, United States.
Borsika A RabinHerbert Wertheim School of Public Health and Human Longevity Science, University of California San Diego, La Jolla, CA, United States; UC San Diego ACTRI Dissemination and Implementation Science Center, University of California San Diego, La Jolla, CA, United States.
Heather Schacht ReisingerCenter for Access and Delivery Research and Evaluation, Iowa City VA Healthcare System, Iowa City, IA, United States; Division of General Internal Medicine, Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, IA, United States; Institute for Clinical and Translational Science, University of Iowa, Iowa City, IA, United States.

Funding

HSRD VA I50 HX003145
6 · The paper itself

Abstract

objectiveData journeys are a way to describe and interrogate "the life of data" (Bates et al 2010). Thus far, they have been used to clarify the mobile nature of data by visualizing the pathways made by handling and moving data. We wanted to use the data journeys method (Eleftheriou et al. 2018) to compare different data journeys by noticing repetitions, patterns, and gaps.

methodsWe conducted qualitative interviews with 43 evaluators, implementers and administrators associated with 21 clinical and training programs, called "Enterprise-Wide Initiatives" (EWIs) that are part of a national health system in the United States. We used inductive and deductive coding to identify narratives of data journeys, and then we used the "swim lane" (Collar et al 2012) format to make data journey maps based on those narratives.

resultsUnlike the actors in Eleftheriou et al. (2018)'s work, who built a data infrastructure to manage clinical data, the actors in our study built data infrastructures to evaluate clinical data. We created and compared two data journey maps that helped us explore differences in data production and management. In tracing the pathways available to the data entity of interest, and the processes through which the actors interacted with it, we noticed how the same piece of information was made to work in different ways.

conclusionsResearchers often must build a new data infrastructures to respond to the unique needs of their evaluation work. Differing abilities lead to differences in what programs can build, and consequently what kinds of evaluation work they can support. With the goal of straightforward comparisons across different programs, a more limited focus on quantitative values, and a better description of the data journeys used by the evaluation teams, might facilitate more nuanced assessments of the evidence of complex outcomes.

Indexed as

Medical InformaticsHumansQualitative ResearchUnited StatesCritical data studiesData journeysEvaluationImplementationInfrastructureScience and technology studies

Identifiers

PMID40090431
PMCPMC13616214

What Socratic holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.