Evidence map›Paper›PMID 40144343›Full record

ArticlePublic health genomics2025

Community Collaboration in Public Health Genetic Literacy: Methods for Co-Designing Educational Resources for Equitable Genomics Research and Practice.

Juhi Salunke, Grace Byfield, Sabrina N Powell, Daniel F Torres, Grace Leon-Lozano, Jahnelle Jackson, Andreas K Orphanides, Jonathan Shaw, Thomas Owens, Jonathan S Berg and 15 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Public health genomics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

25 authors.

Juhi SalunkeDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Grace ByfieldDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Sabrina N PowellDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Daniel F TorresDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Grace Leon-LozanoDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Jahnelle JacksonDepartment of Pathobiology & Translational Science, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Andreas K OrphanidesNC State University Libraries, Raleigh, NC, United States.
Jonathan ShawCommunity Research Board, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Thomas OwensCommunity Research Board, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Jonathan S BergDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Elizabeth BranchUNC School of Medicine, Chapel Hill, NC, United States.
Lennin CaroCommunity Research Board, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Stefanija GiricDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Julianne M O'DanielDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Bradford C PowellDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Ken RayCommunity Research Board, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Carla RobinsonCommunity Research Board, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Samantha SchillingDepartment of Pediatrics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Nicole ShawOlilu Designed, Chapel Hill, NC, United States.
Erin SongCommunity Research Board, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Margaret WaltzDepartment of Social Medicine and Center for Bioethics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Megan C RobertsEshelman School of Pharmacy, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Ann Katherine M ForemanDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Kimberly FossDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Laura V MilkoDepartment of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.

Funding

North Carolina Translational and Clinical Sciences Institute (NC TraCS)UM1TR004406 · UNIV OF NORTH CAROLINA CHAPEL HILL · 2025 to 2025
$8.6M
Age-based genomic screening in newborns, infants, and children: a novel paradigm in public health genomicsR01HG012271 · UNIV OF NORTH CAROLINA CHAPEL HILL · 2025 to 2025
$866k
NCATS NIH HHS UM1 TR004406NHGRI NIH HHS R01 HG012271
6 · The paper itself

Abstract

Introduction: Unequal representation in genetic and genomic research is due to various factors including historically inequitable and unjust institutional research practices, potential mistrust of biomedical research among underrepresented populations, and lack of access to or awareness of research opportunities. Facilitating sustainable dialogue between diverse communities and genetic researchers can cultivate trusting, bidirectional relationships, potentially encouraging greater participation in research. Herein, we describe the co-creation of public health educational materials and dissemination plans using an approach designed to address inequities and foster community dialogue. Methods: In this Methods paper, we describe the iterative co-creation of Genetics and Genomics educational modules by genetics clinicians, researchers, and community members. The goal of these modules is to enhance genetic literacy of the lay population to facilitate informed decision-making regarding genetic research and health services. We used Designing for Dissemination and Sustainability, grounded in Dissemination and Implementation science, and its Fit to Context process framework to guide the process. This approach ensures that the public health context and writing for a diverse audience are considered throughout the modules' development. Conclusion: This article offers an evidence-based template for adoption or adaptation by other community-engaged groups, aimed at bolstering equity and sustainability in the development of health care interventions and with an emphasis on accessible public health literacy. The co-creation by researchers and community members of both materials and dissemination plans may improve the cultural appropriateness and relevance of public health genetics campaigns. Ongoing research is needed to assess the impact of this approach on receptiveness and participation.

Indexed as

Genetic ResearchGenomicsHealth LiteracyPublic HealthCooperative BehaviorHumansCommunity engagementDissemination and implementation scienceGenetic and genomic educationGenetic literacyGenetic researchGenetic screeningHealth equityInformed decision-makingPublic healthUser centered design

Identifiers

PMID40144343
PMCPMC11936475

What Socratic holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.