Evidence map›Paper›PMID 40259273›Full record

ArticleBMC palliative care2025

Supporting relatives when general palliative care is provided at home- a focus group study based on nurses' experiences.

Elina Mikaelsson Midlöv, Susann Porter, Therese Sterner, Katarina Sjögren Forss, Terese Lindberg

Abstract read
In one paragraph

Article in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Elina Mikaelsson MidlövBlekinge Institute of Technology, Faculty of Engineering, Department of Health, Valhallavägen 1, Karlskrona, 371 79, Sweden. elina.mikaelsson.midlov@bth.se.ORCID http://orcid.org/0000-0002-2782-147X
Susann PorterFaculty of Health and Society, Department of Care Science, Malmö University, Malmö, Sweden.ORCID http://orcid.org/0000-0003-1875-0443
Therese SternerFaculty of Health and Society, Department of Care Science, Malmö University, Malmö, Sweden.ORCID http://orcid.org/0000-0002-6625-7031
Katarina Sjögren ForssFaculty of Health and Society, Department of Care Science, Malmö University, Malmö, Sweden.ORCID http://orcid.org/0000-0002-3594-3944
Terese LindbergBlekinge Institute of Technology, Faculty of Engineering, Department of Health, Valhallavägen 1, Karlskrona, 371 79, Sweden.ORCID http://orcid.org/0000-0003-3166-0274

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundRelative's efforts are essential when palliative care is provided at home and support from healthcare professionals is needed. Despite this, since the support provided varies, relatives may have unmet support needs. Many people receive general palliative care at home rather than specialised care, and nurses play a significant role in supporting relatives. This study aimed to explore registered nurses' experiences of supporting relatives before and after a patient's death when general palliative care is provided at home.

methodsThis study used a qualitative explorative design. Data were collected through focus group interviews with 18 registered nurses in home care in Sweden and were analysed using content analysis. The Consolidated Criteria for Reporting Qualitative Research checklist was used for explicit reporting.

resultsThe findings are presented in four categories with subcategories: receiving support to provide support, continuously providing understandable information, balancing different needs and building relationships facilitates safety and identifying needs.

conclusionsEven if registered nurses support relatives to some extent, they rarely reflect on the support they provide and lack structure in providing support both before and after the patient's death. The findings showed inadequacies in support after the patient's death, which is also emphasised in previous studies. The findings also showed deficiencies in routines, local guidelines and checklists as well as in training and education on how to support relatives when palliative care is provided at home, thereby risking that relatives' needs remain unmet. This highlights the need for creating routines and developing detailed local guidelines and checklists on providing support to relatives both before and after the patient's death.

Indexed as

FamilyHome Care ServicesNursesPalliative CareSocial SupportAdultFemaleFocus GroupsHumansMaleMiddle AgedQualitative ResearchSwedenHome careNursesPalliative careRelativesSupport

Identifiers

PMID40259273
PMCPMC12013198

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.