ArticleBMJ open2025
Informal care provision for mental versus somatic disorders in the Netherlands: a cross-sectional investigation of caregiving context and quality of life outcomes.
Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
objectivesTo investigate to what extent informal caregivers of persons with a mental disorder and a somatic disorder compare, in terms of their caregiving context and quality of life measures.
designCross-sectional analysis of an existing panel survey dataset.
settingThe Netherlands, 2020.
participantsInformal caregivers that provided long-term care and support to a loved one with either a somatic disorder (n=428) or mental disorder (n=176). OUTCOME MEASURES: Self-assessed care-related, health-related and mental health-related quality of life and the caregiving context, including background and contextual factors of the informal caregiver and care recipient, caregiving strains and coping and support.
resultsA significant degree of variation was present among the two caregiving groups, in terms of their caregiving context. Notably, caregivers for individuals with mental disorders had a higher subjective burden (p<0.001), care recipient comorbidity (p<0.001), need for permanent surveillance (p=0.003) and total caregiving intensity (p<0.001). Significantly worse caregiver outcomes were reported for caregivers of individuals with mental disorders for care-related (p<0.001), health-related (p=0.011) and mental health-related quality of life (p<0.001). However, the presence of a mental disorder was only found to be significantly associated with worse care-related quality of life scores (B=-4.635, p=0.002).
conclusionsOur findings established that informal caregivers of individuals with mental disorders not only provide care and support in more burdensome caregiving contexts, but also suffer from a worse quality of life compared with informal caregivers of individuals with somatic disorders. Particularly, the impact on care-related quality of life was concerning, with the presence of a mental disorder in the care recipient found to be directly associated with a significantly worse outcome.
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