Evidence map›Paper›PMID 40312459›Full record

ArticleResearch involvement and engagement2025

Embedding consumer and community involvement in antenatal healthcare research: A methodological approach and perspectives of culturally and linguistically diverse women in Australia.

Bonnie R Brammall, Rebecca L Madill, Rhonda M Garad, Bao N Nguyen, Nitya Nagesh, Cheryce L Harrison

Abstract read
In one paragraph

Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Bonnie R BrammallMonash Centre for Health Research and Implementation, Monash University, Clayton, VIC, 3168, Australia.
Rebecca L MadillMonash Centre for Health Research and Implementation, Monash University, Clayton, VIC, 3168, Australia.
Rhonda M GaradMonash Centre for Health Research and Implementation, Monash University, Clayton, VIC, 3168, Australia.
Bao N NguyenConsumer Advisor, Melbourne, VIC, Australia.
Nitya NageshMonash Centre for Health Research and Implementation, Monash University, Clayton, VIC, 3168, Australia.
Cheryce L HarrisonMonash Centre for Health Research and Implementation, Monash University, Clayton, VIC, 3168, Australia. Cheryce.harrison@monash.edu.

Funding

National Health and Medical Research Council (NHMRC) Medical Research Future Fund APP2005207NHMRC Centre for Research Excellence in Health in Preconception and Pregnancy CRE-HiPP; APP1171142
6 · The paper itself

Abstract

backgroundConsumer and Community Involvement (CCI) in healthcare research ensures that the needs of target populations are met through active collaboration between consumers, communities, and researchers. For culturally and linguistically diverse (CALD) women in Australia, disparities in antenatal healthcare are pronounced due to barriers such as language, cultural differences, and systemic inequities. Inclusive CCI can help identify healthcare gaps and improve care. This study aimed to describe the formation of a CCI reference group using the Health in Preconception, Pregnancy, and Postpartum Alliance CCI Co-Development Framework to explore antenatal healthcare experiences and identify opportunities for improvement.

methodsA CCI reference group of 18 CALD women was formed through purposive recruitment. Focus groups were conducted to capture their experiences with antenatal care, focusing on healthcare accessibility, cultural competency, and barriers encountered. Thematic analysis was performed using NVivo software to identify key themes related to antenatal care experiences.

resultsThree key themes were identified from the analysis: (1) Navigating cultural beliefs and antenatal care: Women expressed challenges in reconciling traditional cultural practices with information received during antenatal care, particularly in relation to dietary modifications required for gestational diabetes management, which often conflicted with their cultural norms. (2) Social support: Many women highlighted the importance of familial and peer support during pregnancy, but some experienced isolation due to geographic separation from family. Peer networks and cultural community groups were noted as important alternative support systems. (3) Cultural competency of healthcare providers: Participants consistently reported that healthcare providers with cultural awareness and sensitivity improved their care experiences, increasing trust and satisfaction. The absence of such competency led to confusion and dissatisfaction, particularly when managing pregnancy complications.

conclusionsEmbedding CCI in antenatal healthcare research is essential for creating culturally competent care for CALD women. Addressing healthcare provider cultural competency, adapting health information to reflect cultural nuances, and enhancing mental health support were identified as priority areas. The findings highlight the importance of ongoing consumer engagement to achieve equitable and responsive antenatal care for CALD women in Australia.

trial registrationNot applicable.

Indexed as

Consumer and community involvementCulturally and linguistically diverseCultural responsivenessHealthcare accessMaternity carePregnancyQualitativeStakeholder engagementWomen’s health

Identifiers

PMID40312459
PMCPMC12046684

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.