Evidence map›Paper›PMID 40375395›Full record

ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2025

Co-design of medication management guidance tools for people living with dementia and carers at discharge.

Mouna J Sawan, Alexander J Clough, Natali Jokanovic, Jane Thompson, Yun-Hee Jeon, Elizabeth Manias, Carl Schneider, Timothy F Chen, Danijela Gnjidic

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Designing a communication strategy to promote Alzheimer's disease prevention: The CULTIVAMENTE campaign.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026
    Article
  4. Article
  5. Co-design of medication management guidance tools for people living with dementia and carers at discharge.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Mouna J SawanPharmacy and Bank Building A15, The University of Sydney, Camperdown, New South Wales, Australia.ORCID 0000-0002-0565-3524
Alexander J CloughPharmacy and Bank Building A15, The University of Sydney, Camperdown, New South Wales, Australia.
Natali Jokanovic85 Commercial Road, Department of Infectious Diseases, the Alfred Hospital and Monash University, Melbourne, Victoria, Australia.
Jane ThompsonMember of the public, Canberra, ACT, Australia.
Yun-Hee JeonSusan Wakil Health Building, School of Nursing & Midwifery, The University of Sydney, Camperdown, New South Wales, Australia.
Elizabeth ManiasSchool of Nursing & Midwifery, Monash University, Clayton, Victoria, Australia.
Carl SchneiderPharmacy and Bank Building A15, The University of Sydney, Camperdown, New South Wales, Australia.
Timothy F ChenPharmacy and Bank Building A15, The University of Sydney, Camperdown, New South Wales, Australia.
Danijela GnjidicPharmacy and Bank Building A15, The University of Sydney, Camperdown, New South Wales, Australia.

Funding

Dementia Australia Research FundDementia Centre for Research CollaborationMedical Research Future Fund
6 · The paper itself

Abstract

introductionPeople with dementia and carers face challenges in understanding and managing medications at discharge. This study aimed to develop user-centered, co-designed medication management guidance tools to enhance medication management literacy post-hospitalization for these populations.

methodsA four-phase, multi-methods study integrating experience-based co-design: (1) literature review, qualitative study, and survey; (2) expert advisory panels involving people with dementia; (3) focus groups with people with dementia, carers, and healthcare professionals; and (4) quantitative readability and suitability analysis.

resultsTwo tools were developed: a simplified medication management guide for people with dementia and a carer-focused guide. Topics included shared decision-making, informed consent, and medications that can affect cognition. Participants valued the use of simple and active language, goal-of-care discussions, and the right to second opinion. Tools were acceptable for use from admission and during hospitalization. DISCUSSION: This study addresses gaps in medication related health literacy tools for dementia care, offering a framework for developing similar resources. HIGHLIGHTS: Medication management guidance tools have not included people living with dementia or their carers in their development. This study is the first to describe the co-design of medication management guidance tools for people with dementia. Two tools were generated, one for people with dementia and one for carers to extend their agency. This co-design study can serve as a framework to inform the development of future tools for people with dementia and carers.

Indexed as

CaregiversDementiaHealth LiteracyMedication Therapy ManagementPatient DischargeAgedFemaleFocus GroupsHumansMaleQualitative ResearchSurveys and Questionnairescare coordinationdementia carehealth literacypatient communicationshared decision making

Identifiers

PMID40375395
PMCPMC12081209

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.