ArticleHealth expectations : an international journal of public participation in health care and health policy2025
Co-Designing a Digital Stroke Prevention Platform: Leveraging Lived Experience and Expert Advice.
Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed.
- Patient-Centered Education Through A Massive Open Online Course (MOOC) for Patients With Multiple Myeloma and Caregivers: Descriptive Study of Knowledge Gains by French Association of Patients With Multiple Myeloma (AF3M) and French-Speaking Myeloma Intergroup (IFM).JMIR formative research · 2026Article
- Development of a Health Text Message System to Support Stroke Prevention: A Component of the Love Your Brain Digital Platform.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Processes Underpinning Successful Co-Design: Lessons From a Digital Health Project.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
Corrections and comments
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Authors and funding
20 authors.
Funding
Abstract
backgroundThe majority of strokes are preventable through effective risk factor management. Existing primary prevention strategies have insufficient reach and effectiveness. Digital health technologies offer the potential to overcome some of these barriers. The aim of this study was to co-design the 'Love Your Brain' digital platform, including an online education program (Massive Open Online Course, MOOC) and text messaging system, for community stroke prevention education and management.
methodsUsing snowballing methods, expressions of interest were sought from community members and health knowledge experts (e.g., health professionals and researchers) from across Australia. Participants were purposively selected for diversity in age, sex, location, education (community) and profession (health knowledge experts). A series of eight focus groups were planned. From May 2023 to August 2023, seven online focus groups were undertaken separately with each cohort, to explore perceptions related to the core functions, content and design features. Their insights were used to develop the digital platform. Following a testing period, a final focus group was held with each cohort (March 2024) to evaluate the digital platform further. Focus groups were recorded with participant consent. Recordings and transcripts, live chats and interactive polls from the focus groups were analysed using inductive and deductive thematic approaches, with themes mapped to the Framework for the Design and Evaluation of MOOCs.
resultsTwelve community members and ten health knowledge experts participated in at least one of the eight focus groups, with overall 86% attending five or more. Although some diversity existed in group opinions about the delivery and content, all participants emphasised the importance of using simple, easy-to-understand language and layout throughout, with the inclusion of a variety of statistics, personal stories and expert information. Focusing on emotional motivation was perceived as essential for engagement with the digital platform. Furthermore, being able to personalise the content and provide options for people to explore more advanced information (via external resources and a project-specific website with trusted links) was considered advantageous.
conclusionCo-design with community and knowledge expert cohorts informed and enriched the development of the Love Your Brain digital platform. The co-designed platform is currently being piloted in a feasibility trial. PATIENT OR PUBLIC CONTRIBUTION: People with lived experience of stroke, along with family/caregivers and members of the public, actively participated in the co-design focus groups. The Love Your Brain Management Committee comprises lived experience stroke survivors and carers who worked in partnership with researchers and clinicians to provide oversight and guidance to the development and implementation of all stages of the study, including the preparation of this manuscript.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.