Evidence map›Paper›PMID 40407014›Full record

ArticleJournal of applied gerontology : the official journal of the Southern Gerontological Society2026

Dementia Severity Associated With Unmet Caregiving Needs During Skilled Home Health Care.

Julia G Burgdorf, Jennifer L Wolff, Yolanda Barrón, Halima Amjad

Abstract read
In one paragraph

Article in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Julia G BurgdorfCenter for Home Care Policy & Research at VNS Health, New York, NY, USA.ORCID 0000-0002-3356-1897
Jennifer L WolffDepartment of Health Policy & Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Yolanda BarrónCenter for Home Care Policy & Research at VNS Health, New York, NY, USA.ORCID 0000-0002-7064-937X
Halima AmjadDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.

Funding

Improving Post-Diagnosis Dementia Care in Primary CareK23AG064036 · NIA · JOHNS HOPKINS UNIVERSITY · PI AMJAD, HALIMA · 2020 to 2024
$932k
Supporting Dementia Caregivers During Medicare Home Health: Developing the DECLARE Needs Assessment InterventionK01AG081502 · NIA · VISITING NURSE SERVICE OF NEW YORK · PI Julia Burgdorf · 2023 to 2026
$534k
Effects of Family Caregiver Availability and Capacity on Home Health Care for Older Adults with Alzheimer's Disease and Related DementiasR03AG080082 · NIA · VISITING NURSE SERVICE OF NEW YORK · PI BURGDORF, JULIA · 2023 to 2024
$181k
NIA NIH HHS K01 AG081502NIA NIH HHS K23 AG064036NIA NIH HHS R03 AG080082
6 · The paper itself

Abstract

One-third of home health care (HHC) patients have dementia. Despite the critical role of caregivers for this population, little is known regarding prevalence or risk factors for unmet caregiving needs during HHC. We examined 426,608 older (65+) HHC patients with dementia in 2018. Unmet caregiving needs were determined from HHC clinician reports indicating that (1) no caregiver was present (lack of availability) or (2) the caregiver needed training (lack of capacity). Most (83%) HHC patients with dementia experienced an unmet need for caregiving. Medicaid enrollment and depression were associated with lack of caregiver availability; greater clinical severity and being post-acute were associated with lack of caregiver capacity. Patients with high (compared to low) cognitive symptom severity had higher odds of unmet needs due to lack of caregiver capacity (aOR:1.80; 95% CI: 1.70-1.90). Findings illustrate the gap between dementia caregiving needs and capacity, highlighting the importance of supportive resources such as training.

Indexed as

CaregiversDementiaHealth Services Needs and DemandHome Care ServicesAgedAged, 80 and overFemaleHumansMaleMedicaidNeeds AssessmentRisk FactorsSeverity of Illness IndexUnited StatesAlzheimer’s diseasedementiafamily caregivinghome carehome healthMedicare

Identifiers

PMID40407014
PMCPMC12353668

What Socratic holds

Textmetadata
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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.