ArticleJournal of the American Medical Informatics Association : JAMIA2025
Factors impacting electronic patient-generated data use in safety-net systems: a qualitative study.
Article in Journal of the American Medical Informatics Association : JAMIA, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- Mapping the radiotherapy journey of patients with head and neck cancer: A qualitative study.Asia-Pacific journal of oncology nursing · 2026Article
- People and organizations: the human side of biomedical and health informatics.Journal of the American Medical Informatics Association : JAMIA · 2025Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
objectiveTo characterize patient and clinician perceived barriers and facilitators to using electronic patient-generated data (PGD) in safety-net systems. MATERIALS AND
methodsWe conducted 43 semi-structured interviews (18 clinicians and 25 patients) and observed 15 patient-clinician interactions. Clinical observations were conducted in an integrated urban safety-net system. Patients who spoke English, Spanish, or Cantonese were recruited from this system. Pharmacists, nurses, and clinicians treating chronic diseases were sampled from multiple California safety-net systems. Interview guides were developed based on the Consolidated Framework for Implementation Research (CFIR) and the Behavior Change Wheel (BCW). We conducted thematic analysis through a combination of inductive and deductive coding.
resultsThemes most frequently identified by both clinicians and patients as impacting electronic PGD use were capability-related (knowledge about collecting and using PGD), motivation-related (preference for data sharing; attitude toward digital tools and learning how to use them; the importance of measuring the outcome for health; privacy; and patient-clinician relationship), and opportunity-related (social support). Non-English speakers expressed concerns about inconveniencing others. Clinicians also identified additional opportunity-related themes (resource availability; implementation process; external incentives). DISCUSSION: Despite the growth in electronic PGD and its potential to improve chronic disease care and outcomes, implementation in safety-net systems would benefit from consideration of capability, motivation, and opportunity-related barriers.
conclusionPGD is an increasingly vital part of clinical care. If implementation is pursued without concurrently addressing factors at the patient, clinician, health system, and policy levels, barriers to adoption will persist, especially in under-resourced settings.
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What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.