ArticleAlzheimer's & dementia (New York, N. Y.)
What is older adults' understanding of Alzheimer's disease research registries? Findings from 20 focus group studies.
Article in Alzheimer's & dementia (New York, N. Y.). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Community engagement, recruitment, and retention of minoritized participants in Alzheimer's disease and related dementia research: A systematic review of disparities.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Pooled it
- What is older adults' understanding of Alzheimer's disease research registries? Findings from 20 focus group studies.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
introductionResearch registries address the challenges associated with enrollment of individuals in research studies by matching members to current studies and trials in need of participants. However, recruitment into research registries can be challenging as many lack awareness regarding research registries and need to be educated on their existence, purpose, and significance.
methodsThe present study uses data from 20 online focus groups conducted in English with Black (
resultsThere was a general lack of awareness about Alzheimer's disease (AD) research registries. Participants expressed unfamiliarity with the concept of AD research registries, confusion about eligibility criteria and their purpose, and often conflated them with individual clinical trials. DISCUSSION: Research registries can play a crucial role in identifying and referring potential participants to AD prevention studies. Given the lack of understanding about registries, interventions such as messaging with familiar language can help to address lack of awareness and increase enrollment into AD research registries. Highlights: A better understanding of older adults' perceptions about research registries.More relatable and easy-to-comprehend messaging is needed to raise awareness of research registries.Targeted messaging strategies are needed to recruit participants directly into Alzheimer's disease (AD) clinical trials.
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What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.