ArticleJournal of patient-reported outcomes2025
Person-centred ostomy care: a qualitative study of patients' experiences with routine use of a clinical feedback system during consultations : Word count.
Article in Journal of patient-reported outcomes, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- Predicting the risk of dehydration and readmission among rectal cancer patients with ileostomy: a multicenter observational study.Updates in surgery · 2026Article
- Sexuality in Adult Cancer Patients Living with Enterostomy or Urostomy: A Descriptive Phenomenological Study.Current oncology (Toronto, Ont.) · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAdapting to life with an ostomy can be challenging due to significant bodily changes. To better meet patients' needs and support their adjustment, a clinical feedback system (CFS) with patient-reported outcomes was developed for routine outpatient follow-up consultations with stoma care nurses (SCNs) in specialist health care services. While results from its use prior to consultations are promising, little is known about patients' perceptions of CFS use in consultations with SCNs. Thus, we aimed to explore how patients experience the routine use of the CFS during follow-up consultations in ostomy care.
methodsAn inductive qualitative design was employed, involving semi-structured individual interviews with 27 patients using the CFS as part of routine care. Data were analysed using reflexive thematic analysis.
resultsThe overarching theme, "A flexible, engaged, person-centred follow-up," was developed, along with four themes: (1) Explicit and implicit use of information in consultations, (2) A springboard for deeper dialogue on sensitive issues, (3) Reassurance that changes in health status will be captured and adequately assessed, and (4) Utility depends on continuity of use. There were variations in how patients experienced their responses being utilised by the SCNs during consultations. Responses were referenced implicitly and explicitly, with a preference for direct communication. Patients found personal value in using the CFS, as it facilitated communication, particularly on sensitive topics. SCNs' use of the CFS and expertise provided a sense of reassurance when health status was assessed. Regular use of the CFS and a clear understanding of its purpose enhanced its utility and enabled patients to take a more active role in their treatment.
conclusionThe use of the CFS in ostomy care appears promising. It can improve SCNs' ability to tailor care to patients' needs. However, the tool should be applied consistently to realise its full potential in clinical practice.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.