Evidence map›Paper›PMID 40537841›Full record

ArticleResearch involvement and engagement2025

"We're all in it together": uniting a diverse range of professionals and people with lived experience within the development of a complex, theory-based paediatric speech and language therapy intervention.

Lucy Rodgers, Nicola Botting, Natalie Abdo, Meriem Amer-El-Khedoud, Emma Baker, Sophie Franks, Dave Harford, Patrycja Salimi-Tabar, Laura Temple, Ros Herman

Abstract read
In one paragraph

Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Enhancing the Prospective Acceptability of a Paediatric Speech and Language Therapy Intervention With Parents From Under-Represented Communities.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Lucy RodgersDepartment of Language and Communication Sciences, City St George's, London, UK. lucy.rodgers@citystgeorges.ac.uk.
Nicola BottingDepartment of Language and Communication Sciences, City St George's, London, UK.
Natalie AbdoSussex Community NHS Foundation Trust, Brighton, UK.
Meriem Amer-El-KhedoudDepartment of Language and Communication Sciences, City St George's, London, UK.
Emma BakerSheffield Children's NHS Foundation Trust, Sheffield, UK.
Sophie FranksWest Sussex County Council, Worthing, UK.
Dave HarfordFaculty of Health, Education and Life Sciences, Birmingham City university, Birmingham, UK.
Patrycja Salimi-TabarEthnic Minority Achievement Service, Brighton and Hove City Council, Brighton, UK.
Laura TempleBrighton and Hove Inclusion Support Service, Brighton and Hove City Council, Brighton, UK.
Ros HermanDepartment of Language and Communication Sciences, City St George's, London, UK.

Funding

Wellcome TrustWellcome Trust 223500/Z/21/Z
6 · The paper itself

Abstract

backgroundIt is increasingly commonplace to involve relevant professionals and people with lived experience within healthcare research. Although valuable case studies regarding such involvement exist, there is currently a paucity of case studies highlighting the professional and personal impacts of uniting a diverse group of professionals and people with lived experience within the development of new, theory-based interventions. The aim of this paper is to provide insight into the impacts of involving a diverse range of individuals, unified within a single steering group, within the development of a new, theory-based, paediatric speech and language therapy intervention ("Supporting Words and Sounds" - SWanS). By describing the involvement process in detail and providing our personal insights, we hope our recommendations will be of use to future healthcare researchers. MAIN BODY: Our project steering group consists of two people with lived experience (an adult with Developmental Language Disorder-DLD, a parent of a child with DLD), three specialist NHS speech and language therapists (including one university lecturer with equality and diversity expertise), and two individuals working in the education sector (a specialist teacher and a bilingual educational support worker). Group members have been involved across the 4 phase intervention development process. Tools such as the PiiAF (Public involvement impact Assessment Framework) have guided our personal and professional reflections on our individual experiences of being in a diverse steering group responsible for developing a new and complex theory-based intervention.

conclusionWe found that having a diverse range of people unified in a singular intervention development steering group had unexpected benefits. Learning from each other has enriched professional practice and developed individuals' confidence in terms of playing an active role in research. Our structured reflection has implications for future intervention development research, by highlighting that the provision of a safe, supportive space and nurturing of shared values is key when involving a diverse range of parties. Such contexts promote sustained involvement and therefore have longer term implications for increasing the relevance of the research for those it is aiming to help.

Indexed as

Co-designIntervention developmentPPISpeech and Language therapy

Identifiers

PMID40537841
PMCPMC12180152

What Socratic holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.