ArticleNeurology. Clinical practice2025
Transfer to Adult Care in Epilepsy: A Nationwide Population-Based Register Study.
Article in Neurology. Clinical practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
1 citing paper in PubMed.
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background and Objectives: Adolescence is a crucial life period, which is extra challenging for young persons with epilepsy (YPE), coinciding with transfer from pediatric to adult care. Knowledge on medical and socioeconomic effects of this care transfer is scarce. The aim of this study was to determine medical and socioeconomic outcomes after transfer to adult care in YPE and to identify risk factors of poor outcome. Methods: We conducted a population-based retrospective follow-up study of all individuals in Sweden with epilepsy during their 18th year of life over 5 consecutive years. The data were extracted from 5 comprehensive national registries for 2013-2021. Results: A total of 2,491 adolescents with epilepsy were identified (prevalence 0.46%). Mortality was 0.7% with a standardized mortality rate of 13 compared with the total adolescent population. In patients with an epilepsy-related specialist care contact before the age of 18 years (n = 1719), 22% did not have a planned follow-up visit in specialist care in the 2 following years. The proportion of adolescents who consulted acute medical care for epilepsy increased from 3% to 7% after age 18. Loss to follow-up and acute medical care visits were positively correlated with socioeconomic factors such as lower income, foreign background, and geographic region. Discussion: A gap in care exists for adolescents with epilepsy after transfer to adult medical care with an increase in epilepsy-related emergency care visits and a decrease in planned specialist care follow-up. A poor epilepsy care outcome is associated with lower economic status, foreign background, and more remote geographic region. The pattern of health care consumption suggests that socioeconomic and geographic factors augment known difficulties in transition to adult epilepsy care and highlights that interventions are needed to ensure optimal outcomes.
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.