Evidence map›Paper›PMID 40613978›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2025

Family quality of life after brain injuries: a qualitative study on the perspectives of family members.

José Luis Castillo, Alba Aza, María Fernández, Mari Storli Rasmussen, Nada Andelic, Miguel Ángel Verdugo

Abstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

José Luis CastilloInstitute for Community Inclusion (INICO), University of Salamanca, Salamanca, Spain. joseluiscastilloladeras@usal.es.ORCID http://orcid.org/0000-0001-8095-3204
Alba AzaInstitute for Community Inclusion (INICO), University of Salamanca, Salamanca, Spain.ORCID http://orcid.org/0000-0002-1460-1195
María FernándezInstitute for Community Inclusion (INICO), University of Salamanca, Salamanca, Spain.ORCID http://orcid.org/0000-0002-3398-6086
Mari Storli RasmussenDepartment of Physical Medicine and Rehabilitation, Oslo University Hospital, Oslo, Norway.ORCID http://orcid.org/0000-0003-2794-4768
Nada AndelicDepartment of Physical Medicine and Rehabilitation, Oslo University Hospital, Oslo, Norway.ORCID http://orcid.org/0000-0002-3719-4406
Miguel Ángel VerdugoInstitute for Community Inclusion (INICO), University of Salamanca, Salamanca, Spain.ORCID http://orcid.org/0000-0002-5802-8220

Funding

Ministerio de Ciencia e Innovación PID-2019-110127GB-100Ministerio de Ciencia e Innovación PRE2020-093000
6 · The paper itself

Abstract

purposeExploring the perceptions of family members after an acquired brain injury (ABI) regarding their family quality of life (FQoL) is essential for tailoring interventions aimed at promoting recovery and improving family well-being. The aim of this study was to understand their perspectives on FQoL, identify its components, and differences among different family members of people with ABI according to their role within families.

methodsA qualitative study was conducted with ABI survivors and both primary (PCs) and non-primary family caregivers (NPCs) of adults with ABI. A total of 24 survivors, 22 PCs and 14 NPCs from different families were recruited through Spanish Brain Injury Federation. Eight role-specific focus groups on family well-being were conducted. Following verbatim transcription, a thematic analysis (Braun and Clarke, 2006) was performed to identify main domains of FQoL and their indicators. Comparative analyses examined differences among the three groups of participants.

resultsThemes, subthemes and indicators of FQoL for ABI families were identified, encompassing five domains-individual well-being, family relationships, family resources, community relationships and community resources-. Also, differences between family members' roles were reported.

conclusionThese findings highlight the importance of addressing FQoL by acknowledging the different family members' experiences. From a family-centered approach, professionals should align to the goals and needs of different family members to provide appropriate support, aiming at enhancing the overall quality of life for families affected by ABI.

Indexed as

Brain InjuriesCaregiversFamilyQuality of LifeAdultAgedFamily RelationsFemaleFocus GroupsHumansMaleMiddle AgedQualitative ResearchSpainAcquired brain injuryFamilyFamily-centered careFamily quality of lifeQualitative research

Identifiers

PMID40613978
PMCPMC12432037

What Socratic holds

Textmetadata
LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.