ArticleBritish journal of cardiac nursing2025
Understanding the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals who support them: Systematic review and qualitative meta-study.
Article in British journal of cardiac nursing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Aims: To understand the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals (HCPs) who support them. Methods and Results: A systematic review of qualitative and mixed methods literature, published to July 2023. 4560 abstracts describing patients, caregivers, and HCPs experiences of self-management strategies for HFpEF were identified and screened. Of the 349 full texts identified we included seven papers from three data sources (in 47 patients, 81 caregivers, 129 HCPs) in our final dataset. Key theories, methods and results were extracted, reviewed and synthesised using meta-study techniques.We identified that HFpEF is difficult for HCPs to diagnose and difficult for patients and their caregivers to understand. Patients and caregivers can struggle to access support, which can lead to a 'cycle of decline' over time in patients' outcomes /quality of life. However, self-management can be optimised with adequate support, when the burdens of understanding HFpEF and self-management are acknowledged, when personalised goals are set, and feedback is provided to optimise individualised self-management. Conclusion: The limited capacity of HCPs to support HFpEF patients and caregivers to develop effective self-management understanding and practice can lead to disempowerment and loss of control. Tailored interventions are required to maximise HCP enablement of patients and their caregivers to develop flexible and sustainable self-management strategies. Future research must specify and evaluate the skillset that HCPs require to provide individualised care that is tailored to the holistic needs of people self-managing HFpEF within the local care context.
Indexed as
Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.