Evidence map›Paper›PMID 40639429›Full record

ArticleJournal of the American Medical Directors Association2025

Family Caregiver Availability and Capacity Associated With Home Health Service Types for Patients With Dementia.

Julia G Burgdorf, Jennifer L Wolff, Yolanda Barrón, Halima Amjad

Abstract read
In one paragraph

Article in Journal of the American Medical Directors Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Julia G BurgdorfCenter for Home Care Policy & Research at VNS Health, New York, NY, USA. Electronic address: julia.burgdorf@vnshealth.org.
Jennifer L WolffDepartment of Health Policy & Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Yolanda BarrónCenter for Home Care Policy & Research at VNS Health, New York, NY, USA.
Halima AmjadDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.

Funding

Improving Post-Diagnosis Dementia Care in Primary CareK23AG064036 · NIA · JOHNS HOPKINS UNIVERSITY · PI AMJAD, HALIMA · 2020 to 2024
$932k
Supporting Dementia Caregivers During Medicare Home Health: Developing the DECLARE Needs Assessment InterventionK01AG081502 · NIA · VISITING NURSE SERVICE OF NEW YORK · PI Julia Burgdorf · 2023 to 2026
$534k
Effects of Family Caregiver Availability and Capacity on Home Health Care for Older Adults with Alzheimer's Disease and Related DementiasR03AG080082 · NIA · VISITING NURSE SERVICE OF NEW YORK · PI BURGDORF, JULIA · 2023 to 2024
$181k
NIA NIH HHS K01 AG081502NIA NIH HHS K23 AG064036NIA NIH HHS R03 AG080082
6 · The paper itself

Abstract

objectivesTo investigate the relationship between unmet needs for family caregiver support, defined as lack of caregiver availability or capacity, and home health care (HH) service types delivered to patients with dementia.

designCross-sectional study of national claims and assessment data. SETTING AND

participants325,148 older adults (aged ≥65 years) with diagnosed dementia receiving Medicare-funded HH in 2018.

methodsService types were measured from Medicare claims and refers to patient receipt of each of 6 service types covered during HH: nursing, physical therapy, occupational therapy, speech therapy, social work, and personal care aide. We fit multivariable logistic regression models estimating the odds of receiving each service type as a function of unmet caregiving needs and patient and HH agency characteristics, while clustering at the HH agency level.

resultsIn adjusted models, lack of caregiver availability to help with medical, functional, or instrumental tasks was associated with higher odds of receiving skilled nursing [adjusted odds ratio (aOR) 1.63, 95% CI 1.47-1.81], aide (aOR 1.61, 95% CI 1.54-1.68), and social work (aOR 2.71, 95% CI 2.56-2.86), respectively. Lack of caregiver capacity to help with medical, functional, or instrumental tasks was associated with higher odds of receiving skilled nursing (aOR 1.29, 95% CI1.20-1.39), physical therapy (aOR 1.74, 95% CI1.68-1.81), and social work (aOR 1.24, 95% CI 1.17-1.28), respectively. CONCLUSIONS AND IMPLICATIONS: We observed significant associations between unmet needs for caregiving support and HH service delivery for patients with dementia. Expanding HH quality measurement and risk adjustment data elements to include measures of caregiver availability and capacity are necessary steps toward supporting HH providers' efforts to meet patients' needs regardless of their caregiving context.

Indexed as

CaregiversDementiaHome Care ServicesAgedAged, 80 and overCross-Sectional StudiesFemaleHumansMaleMedicareUnited StatesAlzheimer diseasedementiafamily caregivinghome careHome healthMedicare

Identifiers

PMID40639429
PMCPMC12355437

What Socratic holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.