Evidence map›Paper›PMID 40664762›Full record

ArticleEye (London, England)2025

A thematic analysis of patients' experiences of receiving treatment for Neovascular age-related macular degeneration (nAMD).

Julie Hapeshi, Samantha Hughes, Martin McKibbin, Peter H Scanlon

Abstract read
In one paragraph

Article in Eye (London, England), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Julie HapeshiGloucestershire Retinal Research Group (GRRG), Cheltenham General Hospital, Cheltenham, UK.
Samantha HughesUniversity of Gloucestershire, School of Education and Sciences, Cheltenham, UK.ORCID http://orcid.org/0000-0002-7715-9808
Martin McKibbinLeeds Teaching Hospitals NHS Trust, Leeds, UK.ORCID http://orcid.org/0000-0003-4388-243X
Peter H ScanlonGloucestershire Retinal Research Group (GRRG), Cheltenham General Hospital, Cheltenham, UK. p.scanlon@nhs.net.ORCID http://orcid.org/0000-0001-8513-710X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BACKGROUND/

objectivesA positive patient experience is a key element of quality healthcare but data on the patient experience is rarely collected as part of routine care. This study analysed survey and discussion group comments from patients treated for neovascular AMD (nAMD) treatment to identify key elements of the patient experience. SUBJECTS/

methodsFree text comments from an online Macular Society member survey and quotes from subsequent, local, in-person patient discussion groups were reviewed. Thematic analysis was used to code the responses and to identify major themes.

resultsAnalysis include 167 free text comments from Macular Society members and quotes from 2 local discussion groups, with patients and their carers. Key themes, important for the patient experience, included: time and availability of appointments, accessibility and duration of clinic visits, the delivery and quality of care, communication and access to written information and confidence in the healthcare team.

conclusionsFeedback from patients with nAMD and their carers identified a number of key themes that are associated with either a positive or negative patient experience. Construction of an appropriate patient-reported experience measure and collection of data, either locally or nationally, would help identify areas of the care pathway where improvements may be necessary. Improving the patient experience may encourage adherence to and persistence with treatment and the outcomes.

Indexed as

Angiogenesis InhibitorsPatient SatisfactionWet Macular DegenerationAgedAged, 80 and overCaregiversFemaleHealth Services AccessibilityHumansMaleMiddle AgedQuality of Health CareSurveys and QuestionnairesAngiogenesis Inhibitors

Identifiers

PMID40664762
PMCPMC12402154

What Socratic holds

Textmetadata
LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.