Evidence map›Paper›PMID 40694553›Full record

ArticlePloS one2025

Participant engagement in a national longitudinal study of COVID-19: Insights from the INSPIRE study.

Kris Pui Kwan Ma, Tracy Stober, Michael Gottlieb, Rachel E Geyer, Kristin Rising, Sharon Saydah, Michelle Santangelo, Kristyn Gatling, Dylan Grau, Ralph C Wang and 16 more

Abstract read
In one paragraph

Article in PloS one, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

26 authors.

Kris Pui Kwan MaDepartment of Family Medicine, University of Washington, Seattle, Washington, United States of America.ORCID https://orcid.org/0000-0003-4198-0052
Tracy StoberDepartment of Emergency Medicine, University of Washington, Seattle, Washington, United States of America.
Michael GottliebDepartment of Emergency Medicine, Rush University Medical Center, Chicago, Illinois, United States of America.
Rachel E GeyerDepartment of Family Medicine, University of Washington, Seattle, Washington, United States of America.ORCID https://orcid.org/0000-0003-0223-3070
Kristin RisingDepartment of Emergency Medicine, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, United States of America.
Sharon SaydahNational Center for Immunizations and Respiratory Diseases, Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America.
Michelle SantangeloDepartment of Emergency Medicine, Rush University Medical Center, Chicago, Illinois, United States of America.ORCID https://orcid.org/0000-0003-4353-0995
Kristyn GatlingDepartment of Medicine, Division of Infectious Diseases, Rush University Medical Center, Chicago, Illinois, United States of America.ORCID https://orcid.org/0009-0004-2294-1650
Dylan GrauDepartment of Emergency Medicine, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, United States of America.
Ralph C WangDepartment of Emergency Medicine, University of California, San Francisco, California, United States of America.ORCID https://orcid.org/0000-0001-5382-9486
Juan Carlos MontoyDepartment of Emergency Medicine, University of California, San Francisco, California, United States of America.
Ahamed IdrisDepartment of Emergency Medicine, University of Texas Southwestern Medical Center, Dallas, Texas, United States of America.
Samuel MacDonaldDepartment of Emergency Medicine, University of Texas Southwestern Medical Center, Dallas, Texas, United States of America.
Mandy J HillDepartment of Emergency Medicine, University of Texas Health Science Center at Houston, McGovern Medical School, Houston, Texas, United States of America.ORCID https://orcid.org/0000-0001-9778-358X
Ryan HuebingerDepartment of Emergency Medicine, University of Texas Health Science Center at Houston, McGovern Medical School, Houston, Texas, United States of America.
Maria G PradoDepartment of Family Medicine, University of Washington, Seattle, Washington, United States of America.
Nicole L GentileDepartment of Family Medicine, University of Washington, Seattle, Washington, United States of America.ORCID https://orcid.org/0000-0002-9548-7012
Erica SpatzDepartment of Epidemiology, Yale School of Public Health, New Haven, Connecticut, United States of America.
Caitlin MalikiDepartment of Emergency Medicine, Yale School of Medicine, New Haven, Connecticut, United States of America.ORCID https://orcid.org/0000-0003-3436-6791
Jocelyn DorneyDepartment of Emergency Medicine, Yale School of Medicine, New Haven, Connecticut, United States of America.
Joann G ElmoreDivision of General Internal Medicine and Health Services Research, David Geffen School of Medicine at UCLA, Los Angeles, California, United States of America.
Michelle L'HommedieuDivision of General Internal Medicine and Health Services Research, David Geffen School of Medicine at UCLA, Los Angeles, California, United States of America.
Robert A WeinsteinDepartment of Medicine, Division of Infectious Diseases, Rush University Medical Center, Chicago, Illinois, United States of America.ORCID https://orcid.org/0000-0002-3390-858X
Arjun K VenkateshDepartment of Epidemiology, Yale School of Public Health, New Haven, Connecticut, United States of America.ORCID https://orcid.org/0000-0002-8248-0567
Kari A StephensDepartment of Family Medicine, University of Washington, Seattle, Washington, United States of America.
INSPIRE Group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo examine participants' motivations and their experiences throughout a decentralized, longitudinal COVID-19 study in the U.S.

methodsWe recruited 355 participants from the Innovative Support for Patients with SARS-CoV-2 Infections Registry (INSPIRE) between November 2022 - March 2023 to answer five qualitative survey questions anonymously. We used an inductive content analysis approach to analyze the data.

resultsWe identified five key themes from the analysis, which reflected participants' a) motivations to join the study, b) study benefits, c) perceptions of survey questions, d) experiences with the research process, and e) preferences for disseminating research findings. Participants were motivated to learn with researchers about COVID-19. They expressed divided opinions about the relevance of INSPIRE research questions. They reported difficulties navigating the virtual research platform and the need for making survey participation less cognitively demanding. They sought more regular feedback on study findings.

conclusionsOur findings offered insights into incorporating decentralized participatory methods in longitudinal research, strengthening reciprocal research communications, making virtual research platforms user-friendly, and employing strategies to reduce participants' cognitive burden in research. POLICY IMPLICATIONS: Longitudinal studies should focus on optimizing these aspects of participant engagement to produce rigorous findings that inform policy and practice on lasting effects of COVID-19 including Long COVID.

Indexed as

COVID-19Patient ParticipationAdultAgedFemaleHumansLongitudinal StudiesMaleMiddle AgedMotivationRegistriesSARS-CoV-2Surveys and QuestionnairesUnited States

Identifiers

PMID40694553
PMCPMC12282896

What Socratic holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.