Evidence map›Paper›PMID 40764684›Full record

ArticleNPJ precision oncology2025

User-centered design approach to visualize PROMs for molecular tumor boards.

Sara Bäcker, Brita Sedlmayr, Miriam Goldammer, Katharina Schuler, Maria Zerlik, Cosima Strantz, Philipp Unberath, Linda Gräßel, Martin Sedlmayr, Markus Wolfien

Abstract read
In one paragraph

Article in NPJ precision oncology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Sara BäckerInstitute for Medical Informatics and Biometry, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Dresden, Germany. sara.baecker@tu-dresden.de.
Brita SedlmayrInstitute for Medical Informatics and Biometry, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Dresden, Germany.
Miriam GoldammerInstitute for Medical Informatics and Biometry, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Dresden, Germany.
Katharina SchulerInstitute for Medical Informatics and Biometry, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Dresden, Germany.
Maria ZerlikInstitute for Medical Informatics and Biometry, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Dresden, Germany.
Cosima StrantzMedical Informatics, Friedrich-Alexander-Universität Erlangen-Nürnberg, Erlangen, Germany.
Philipp UnberathMedical Center for Information and Communication Technology, Universitätsklinikum Erlangen, Friedrich-Alexander-Universität Erlangen-Nürnberg, Erlangen, Germany.
Linda GräßelDepartment of Internal Medicine I, Hematology, Oncology and Stem Cell Transplantation, Medical Center - University of Freiburg, Faculty of Medicine, Freiburg, Germany.
Martin SedlmayrInstitute for Medical Informatics and Biometry, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Dresden, Germany.
Markus WolfienInstitute for Medical Informatics and Biometry, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Dresden, Germany.

Funding

Bundesministerium für Bildung und Forschung 01ZZ2002Bundesministerium für Bildung und Forschung 01ZZ2322ABundesministerium für Bildung und Forschung 01ZZ2322IBundesministerium für Bildung und Forschung 01ZZ2322R
6 · The paper itself

Abstract

Integrating Patient-Reported Outcome Measures (PROMs) into Molecular Tumor Boards (MTBs) remains challenging due to the complexity of data visualization and integration into clinical workflows. This work, as part of the German PM4Onco project, aims to identify visualization requirements for PROMs and develop a prototype for PROMs integration in cBioPortal, facilitating broader application within oncology care. We employed a qualitative research approach, including developing personas for MTB stakeholders, conducting a literature-based requirements analysis, organizing a co-design workshop to create low-fidelity prototypes, and evaluating the highest-rated prototype variant through an online survey distributed to MTB physicians across Germany. Seven specialist groups were identified, with key needs including intuitive visualization, clear axis labeling, and longitudinal symptom tracking. The resulting mid-fidelity mockup incorporated PROMs data within cBioPortal's timeline view and a detailed PROMs tab, featuring trend indicators, line graphs, and customizable health displays. Usability evaluation by MTB members yielded a SUS score of 67, indicating an initial indicator of acceptable usability, with suggestions for improvements like threshold scores and deeper clinical data integration. While PROMs offer critical patient insights, they remain underused in MTBs. Our early-stage prototype demonstrates potential for addressing this gap, with future work focusing on implementation, broader testing, and international validation.

Identifiers

PMID40764684
PMCPMC12325938

What Socratic holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.