Evidence map›Paper›PMID 40912696›Full record

ArticleBMJ open gastroenterology2025

Pain experience of people with inflammatory bowel disease: a qualitative study.

Charlotte Beames, Afra Azadi, Amanda C de C Williams, ADVANTAGE Consortium

Abstract read
In one paragraph

Article in BMJ open gastroenterology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Charlotte BeamesResearch Department of Clinical, Educational and Health Psychology, University College London, London, UK.
Afra AzadiResearch Department of Clinical, Educational and Health Psychology, University College London, London, UK.ORCID http://orcid.org/0009-0001-5616-8481
Amanda C de C WilliamsResearch Department of Clinical, Educational and Health Psychology, University College London, London, UK amanda.williams@ucl.ac.uk.ORCID http://orcid.org/0000-0003-3761-8704
ADVANTAGE Consortium

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionPeople with inflammatory bowel disease (IBD) commonly experience pain, whether during active disease or remission, which interferes with daily life and major goals and causes distress. Current psychological methods of pain management draw from musculoskeletal pain interventions, but it has not been established that the musculoskeletal model is a good fit. We aimed to outline a psychological model of IBD pain.

methodsWe used qualitative methods: a very open interview (Grid Elaboration Method), conducted online and transcripts analysed for themes and subthemes. 15 men and 15 women with IBD pain, recruited from a national charity, took part in 4 months to February 2024. Participants scored their average pain 5/10 and interference by pain with activity 6/10, where 10 is maximum pain or interference.

resultsWe extracted five inter-related themes: on the emotional impact of pain and symptoms; the challenge of pain; restrictions due to pain and other IBD symptoms; shortcomings in healthcare, particularly for pain; and poor public understanding of IBD. Although the first theme, universally endorsed, covered anxiety about the meaning of pain, we did not find the fears about physical integrity that characterise much musculoskeletal pain, nor the avoidance of physical activities based on those fears.

conclusionWe propose that further exploration is warranted of the experience of IBD-related pain and how people adjust to it. This will inform the design of better psychologically-informed interventions to help people with IBD manage their pain, independently and in partnership with healthcare.

Indexed as

Inflammatory Bowel DiseasesMusculoskeletal PainPainActivities of Daily LivingAdultAgedAnxietyFemaleHumansInterviews as TopicMaleMiddle AgedPain ManagementPain MeasurementQualitative ResearchABDOMINAL PAININFLAMMATORY BOWEL DISEASEPSYCHOLOGY

Identifiers

PMID40912696
PMCPMC12414221

What Socratic holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.