Evidence map›Paper›PMID 40928490›Full record

ArticleNephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association2026

Transition of patients with hereditary nephropathies from paediatric to adult care.

Maria Vanessa Perez Gomez, George-Claudiu Costea, Laura Claus, Emilie Cornec-Le Gall, Albertien M van Eerde, Sandrine Lemoine, Jaap Groothoff, Elena Levtchenko, Luisa Klein, Lars Pape and 2 more

Abstract readConsensus Statement
In one paragraph

Article in Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Autosomal Dominant Alport Syndrome.Journal of the American Society of Nephrology : JASN · 2026
    Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Maria Vanessa Perez GomezDepartment of Nephrology and Hypertension, Health Research Institute-Fundación Jiménez Díaz University Hospital, Universidad Autónoma de Madrid (IIS-FJD, UAM), Madrid, Spain.ORCID 0000-0003-4558-5236
George-Claudiu CosteaPediatric Nephrology Department, Fundeni Clinical Institute, Bucharest, Romania.
Laura ClausDepartment of Genetics, University Medical Centre Utrecht, Utrecht, The Netherlands.ORCID 0000-0003-2364-4362
Emilie Cornec-Le GallService de Néphrologie, Hémodialyse et Transplantation Rénale, Centre de référence MARHEA, Filière ORKID, CHRU  Brest, Brest, France.ORCID 0000-0003-1958-4459
Albertien M van EerdeDepartment of Genetics, University Medical Centre Utrecht, Utrecht, The Netherlands.
Sandrine LemoineService de Néphrologie, Dialyse, Exploration Fonctionnelle Rénale, Hôpital Edouard Herriot, HCL, INSERM 1060, Lyon, France.ORCID 0000-0002-3460-2507
Jaap GroothoffDepartment of Paediatric Nephrology, Emma Children's Hospital, Amsterdam UMC, Amsterdam, The Netherlands.
Elena LevtchenkoDepartment of Paediatric Nephrology, Emma Children's Hospital, Amsterdam UMC, Amsterdam, The Netherlands.
Luisa KleinDivision of Pediatric Nephrology, Department of Pediatrics, University Hospital Cologne and Faculty of Medicine, University of Cologne, Cologne, Germany.
Lars PapeDepartment of Pediatrics, University Medical Hospital, Essen, Germany.ORCID 0000-0002-3635-6418
Roman-Ulrich MüllerDepartment II of Internal Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.ORCID 0000-0001-6910-0745
Max C LiebauDepartment of Pediatrics, RWTH Aachen University Hospital, Aachen, Germany.ORCID 0000-0003-0494-9080

Funding

ERC CoG-101045467European Union 101080717Instituto de Salud Carlos III PI22/01168Instituto de Salud Carlos III RD21/0005/0001Instituto de Salud Carlos III RD24/0004/0001NWO 09150172310100ZonMw 09150172310100
6 · The paper itself

Abstract

Adolescents and young adults with chronic kidney disease (CKD), particularly those with genetic kidney diseases, face unique challenges as they transition from paediatric to adult nephrology care. This period is marked not only by changes in healthcare providers but also by significant developmental, psychosocial and medical complexities. In response, the European Renal Association Working Group on Genes and Kidney and the European Society for Paediatric Nephrology Working Group on Inherited Kidney Diseases have collaborated to develop practical advice for healthcare professionals involved in transition care across Europe and beyond. This document outlines key principles and offers practical recommendations to support a successful transition, emphasizing the need for early planning, patient education, individualized approaches and multidisciplinary coordination. Special considerations are highlighted for patients with genetic kidney diseases, including those with syndromic manifestations, reproductive implications and the need for continuity of care across specialties. The document also identifies knowledge gaps, proposes directions for future research and collaboration and encourages the implementation of transition protocols adapted to national and local healthcare systems. By harmonizing practices and fostering shared responsibility between paediatric and adult nephrology teams, this joint initiative aims to improve health outcomes, patient empowerment and long-term engagement in care for young people with CKD.

Indexed as

Kidney DiseasesRenal Insufficiency, ChronicTransition to Adult CareAdolescentAdultChildHumansNephrologyYoung Adultchronic kidney diseasegenetic kidney diseaseinherited kidney diseasetransfertransition

Identifiers

PMID40928490
PMCPMC12855608

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.