ArticleHealth expectations : an international journal of public participation in health care and health policy2025
Accessing Care Across Cultures: Qualitative Insights Into the Reality of Informal Caregivers From Ethnically Minoritised Groups.
Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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Who cites it
1 citing paper in PubMed.
- A qualitative exploration of informal carers' experiences with medication management and accessing community pharmacy support for people with long-term conditions.Exploratory research in clinical and social pharmacy · 2026Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
introductionThere remains limited research exploring the experiences of informal carers from ethnically minoritised groups, particularly to illustrate perceptions of caring roles and challenges they may face to address unmet needs. While barriers such as language, cultural expectations and discrimination are acknowledged in wider literature, little is known about how these influence caregiving experiences or access to services in practice. This work seeks to better describe the barriers and facilitators impacting carers from ethnically minoritised groups, as well as illustrate possible influences of culture and carer identity affecting this under-researched population.
methodsThroughout June-July 2024, semi-structured interviews were conducted with informal caregivers from ethnically minoritised groups (including: Pakistani, Black African, Indian, Arab, Chinese and Yemeni communities). Interviews were audio-recorded and transcribed verbatim. Reflexive thematic analysis was used to develop themes. Ethical approval was obtained from Newcastle University Research Ethics Committee, ref: 2275/46476).
resultsFourteen carers of a variety of ages and ethnicities participated. Three overarching themes were developed from the data that centred on the following: Defining the role of a carer: people's journeys to becoming carers and links to roles as interpreters. Advocating for inclusive care: to receive accessible and understandable information. The impact of a person's wider community and culture upon their caring responsibility: culture and health are interlinked, and this influences the support that carers may need.
conclusionCarers from ethnically minoritised groups have faced challenges with linguistic barriers and the paucity of healthcare services that are sensitive to cultural differences. Much of the work to date has focused on 'formal' caregivers and paid roles, as well as the experiences of people from ethnic majority groups. This study contributes unique perspectives to the current knowledge base and raises novel, learning points specific to supporting carers from ethnically minoritised groups. Future research could extend the conclusions from this work to specifically explore possible ethnic and cultural nuances in caring experiences. PATIENT OR PUBLIC CONTRIBUTION: An informal carer (David Black) was involved in the design of the study and its materials, and carers from various ethnic minority groups were involved. The NIHR INVOLVE guidelines and recommendations for carer involvement in research were followed.
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