Evidence map›Paper›PMID 40929145›Full record

ArticleThe Gerontologist2025

Exploring the unmet needs of Latino dementia caregivers: a qualitative study.

Maria M Quiñones-Cordero, Sally Norton, Catherine Rivas, Dolores Gallagher-Thompson, Caroline Silva

Registry-linked trialAbstract read
In one paragraph

Article in The Gerontologist, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04875065 (Healthy Aging Research Program), which is not on this map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04875065 nacompletednot on this map

Healthy Aging Research Program (HARP): Engage Coaching Project for Latinos

TypeinterventionalSponsorUniversity of RochesterRan2021 to 2022Enrolled10ConditionsSocial Isolation, Loneliness, Caregiver BurnoutArmsEngage coaching
3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Maria M Quiñones-CorderoElaine C. Hubbard Center for Nursing Research on Aging, The School of Nursing, University of Rochester Medical Center, United States.ORCID 0000-0001-5881-8436
Sally NortonThe School of Nursing, University of Rochester Medical Center, Rochester, New York, United States.
Catherine RivasDepartment of Psychology, The City College of New York, New York, New York, United States.
Dolores Gallagher-ThompsonDepartment of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, California, United States.
Caroline SilvaDepartment of Psychiatry, University of Rochester Medical Center, Rochester, New York, United States.

Funding

Rochester Roybal Center for Social Ties and Aging ResearchP30AG064103 · NIA · UNIVERSITY OF ROCHESTER · PI VAN ORDEN, KIMBERLY ALLISON · 2019 to 2023
$3.6M
National Institute on Aging to the Rochester Roybal Center for Social Ties & Aging Research P30AG064103NIA NIH HHS P30 AG064103
6 · The paper itself

Abstract

BACKGROUND AND

objectivesOver 12% of older Latinos in the United States have Alzheimer's disease and related dementias (ADRD), facing earlier onset of the disease and severe symptoms compared to non-Hispanic Whites. These disparities in ADRD among Latinos can lead to significant caregiver strain and burden in Latino ADRD caregivers. Notably, Latino ADRD caregivers have poor overall health outcomes and face systemic inequities including limited access to quality dementia care resources that impact their well-being significantly. This qualitative descriptive study aimed to investigate Latino caregivers' unmet needs and challenges in caring for someone with dementia. RESEARCH DESIGN AND

methodsParticipants were twenty-three Latino ADRD caregivers, most of whom were caring for a parent with ADRD. Caregivers were recruited nationally through online research platforms or locally through community outreach and provider referrals. They completed in-depth semi-structured interviews in English or Spanish. Audio recordings were transcribed and analyzed in Atlas.ti 23 using a thematic content analysis approach.

resultsFour themes were derived from the data analysis as key areas of caregiving needs for Latinos: need to connect socially with others; need for resources to provide care; need to understand dementia and navigating existing resources and future care planning; and need for empathic, culturally congruent healthcare. DISCUSSION AND IMPLICATIONS: Results identify several areas of unmet needs among Latino ADRD caregivers, elucidating nuanced aspects about the challenging experiences of Latino caregivers. Findings highlight potential areas for future research to develop targeted and culturally attuned interventions to improve Latino ADRD caregiver well-being.

Indexed as

Alzheimer DiseaseCaregiversDementiaHealth Services Needs and DemandHispanic or LatinoAdultAgedFemaleHumansMaleMiddle AgedNeeds AssessmentQualitative ResearchUnited StatesAlzheimer’s diseaseCaregivingCultureHealth disparities

Identifiers

PMID40929145
PMCPMC12988723

What Socratic holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.