ArticleJournal of primary care & community health
Being Otherness: A Phenomenological Journey of Stroke Survivors' Stigma.
Article in Journal of primary care & community health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Stigma Profiles and Psychosocial Correlates Among Women with Pelvic Organ Prolapse: A Latent Class Analysis.International urogynecology journal · 2026Article
- Research progress on social participation of young and middle-aged stroke survivors: a narrative review.Frontiers in psychiatry · 2026Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundStroke rehabilitation profoundly impacts individuals' physical, emotional, and social identities, presenting significant challenges to self-perception, mental health, and quality of life. Social stigma, particularly internalized stigma, exacerbates these difficulties, influencing recovery and rehabilitation. Despite its critical implications, the experiences of internal stigma among stroke survivors remain underexplored, particularly within specific cultural contexts.
aimThis study aims to explore the lived experiences of stigma among stroke survivors in Indonesia, focusing on its impact on their self-identity, social interactions, and recovery process.
methodsA qualitative study employing hermeneutic phenomenology was conducted to explore the experiences of 12 stroke survivors. Participants were purposively sampled from a neurological rehabilitation center in Bali, Indonesia. Data were collected through semi-structured interviews conducted in Bahasa Indonesia, focusing on self-perception, social interactions, and recovery challenges. Thematic analysis was used to identify and interpret core themes, supported by rigorous methods to ensure credibility, dependability, and transferability.
resultsFour main themes emerged: (1) Journey of Self-Acceptance and Inner Struggles: Participants described challenges in accepting their altered identities, grappling with self-image, guilt, and the quest for purpose. Rediscovering usefulness emerged as a key coping mechanism. (2) Challenges in Social Connections and Communication: Survivors experienced shrinking social circles, communication difficulties, and feelings of devaluation, often leading to social isolation and emotional distress. (3) Navigating External Perceptions and Social Stigma: Participants reported discrimination, unfair treatment, and a lack of respect, contributing to feelings of alienation and diminished dignity. (4) Resilience and Support Systems in Recovery: Resilience, supported by strong relationships and rehabilitation efforts, played a crucial role in fostering recovery and finding new meaning in life.
conclusionInternal stigma profoundly impacts stroke survivors' recovery journeys, shaping their emotional resilience, social interactions, and self-perception. Addressing stigma through targeted interventions, inclusive care models, and societal education can enhance survivors' quality of life and recovery outcomes. Future research should explore broader populations to generalize findings and develop tailored interventions to reduce stigma's negative impact.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.