Health Distress and Challenges in Patients With Myeloproliferative Neoplasms During Follow-Up Consultations at the Outpatient Clinic: A Phenomenological Study.
Article in Cancer reports (Hoboken, N.J.), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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1 · What the graph read from it
What it found
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2 · The registry
The trial behind it
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5 · Who and what money
Authors and funding
10 authors.
Yating LiuState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0000-0001-5674-0137
Jinying ZhaoState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0009-0009-4424-2929
Qianqian ZhangState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0009-0005-7604-8953
Qingyan GaoState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0009-0005-1182-1378
Yayun CaoState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0009-0008-3981-0955
Jia HeState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0009-0006-6882-2029
Lihua HanState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0009-0002-9034-4183
Yandi WangState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0009-0009-4218-5633
Qian YangState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0009-0008-8314-9439
Wenjun XieState Key Laboratory of Experimental Hematology, National Clinical Research, Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China.ORCID 0000-0003-4463-2205
Funding
Nightingale Nursing Research Fund for China Medical Foundation Clinical Medical Research Promotion Program 2025CMFA28Special Research Fund for Central Universities, Peking Union Medical College 3332023063
6 · The paper itself
Abstract
backgroundMyeloproliferative neoplasms (MPN) present significant management challenges as their constitutional symptoms greatly affect patients' quality of life. While current literature addresses hematological aspects, the full symptom burden and post-clinic challenges for adult patients, especially in outpatient settings, remain unclear.
aimsTo systematically identify and characterize the health distress and challenges experienced by patients with MPN in mainland China. METHODS AND
resultsThis qualitative study employed semi-structured interviews with adults diagnosed with MPN (n = 26) to explore their experiences in the outpatient clinic. Colaizzi's descriptive framework guided transcript analysis. Four themes and 12 subthemes were identified: (1) living with the illness, (2) the Sword of Damocles, (3) role conflict, and (4) systemic barriers. These themes informed the development of a trajectory describing the physical and psychological experiences of MPN patients after outpatient visits.
conclusionChinese MPN patients encounter significant health challenges, including persistent symptoms, psychological distress, social limitations, and inadequate self-management. A comprehensive understanding of their longitudinal experiences is essential for designing effective interventions. Additional research should focus on integrating biopsychosocial management into routine follow-up care.
Indexed as
Myeloproliferative DisordersPsychological DistressQuality of LifeStress, PsychologicalAdultAgedAmbulatory Care FacilitiesChinaFemaleFollow-Up StudiesHumansMaleMiddle AgedQualitative Researchexperiencehealth distressMPNmyeloproliferative neoplasmsoutpatient clinicqualitative research
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.
Health Distress and Challenges in Patients With Myeloproliferative Neoplasms During Follow-Up Consultations at the Outpatient Clinic: A Phenomenological Study. · full record | Socratic