ArticleJournal of personalized medicine2025
Data Sharing, Biopsies and Patient Confidentiality in a Precision Medicine Trial for Childhood Cancer: A Mixed Method Study of Parents, Oncologists, and Scientists' Perspectives.
Yvanna Lei, Kate Hetherington, Rebecca Daly, Niki Rensen, Brittany C McGill, David S Ziegler, Loretta M S Lau, Vanessa Tyrrell, Jonathan Karpelowsky, Mark J Cowley and 4 more
Abstract read
In one paragraphArticle in Journal of personalized medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
2 · The registryThe trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
3 · Its place in the literatureWho cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
4 · The recordCorrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
5 · Who and what moneyAuthors and funding
14 authors.
Yvanna LeiSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.
Kate HetheringtonSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.ORCID 0000-0002-5457-5462 Rebecca DalySchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.ORCID 0000-0003-1096-0526 Niki RensenSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.
Brittany C McGillSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.ORCID 0000-0002-2134-2988 David S ZieglerSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.ORCID 0000-0001-7451-7916 Loretta M S LauSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.ORCID 0000-0002-3172-0970 Vanessa TyrrellSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.
Jonathan KarpelowskyDepartment of Paediatric Surgery, Children's Hospital at Westmead, Westmead, NSW 2145, Australia.ORCID 0000-0002-2538-6400 Mark J CowleySchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.ORCID 0000-0002-9519-5714 Michelle HaberSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.
Claire E WakefieldSchool of Clinical Medicine, Discipline of Pediatrics, UNSW Medicine and Health, UNSW Sydney, Sydney, NSW 2031, Australia.ORCID 0000-0001-7704-7067 Funding
Cancer Institute Translational Program Grant 2021/TPG2112NHMRC APP2008300
6 · The paper itselfAbstract
PubMed holds no abstract for this paper.
Indexed as
biopsyconfidentialitydata sharingparentspediatric oncologyprecision medicinescientists
Identifiers
PMID41295233
PMCPMC12653184
What Socratic holds
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LicenceCC BY
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