ArticleFrontiers in human neuroscience2025
Supporting autistic adults with complex communication needs in making their voices heard: examining an adaptation of the
Article in Frontiers in human neuroscience, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Introduction: Autistic adults with speech, language and/or cognitive challenges are often excluded from research, particularly from studies examining first-person perspectives, as these generally require that participants have strong speech, language, and cognitive skills. The current pilot study extends previous work and examines whether the Methods: Eleven young autistic adults with complex communication needs completed the CANDID-R interview using visual supports. These visual supports were provided to assist participants' comprehension of interview questions and to support them in answering the interview questions. Participants' caregivers also completed the interview and their answers to specific validation questions were compared to those of their adult children. Additionally, behavioral observations were also completed. Results: The findings from this pilot study indicate that our adaptation of the Conclusion: Autistic people with complex communication needs must be included in research about the lived experiences of autistic people. Building on previous work, we show that, with dedication and imagination, equitable and inclusive research is possible.
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