Evidence map›Paper›PMID 41323480›Full record

ArticleCrohn's & colitis 3602025

The Dedicated Inflammatory Bowel Disease Nurse, If You Know Them, You Love Them: Survey of the Italian IBD Patients' Association.

Daniele Napolitano, Franco Scaldaferri, Salvo Leone, Enrica Previtali, Gionata Fiorino, Flavio Caprioli, Massimo Claudio Fantini, Simona Radice, Greta Lorenzon, Elisa Schiavoni and 1 more

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Article in Crohn's & colitis 360, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Review
  2. Review
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

11 authors.

Daniele NapolitanoCEMAD-Fondazione Policlinico Gemelli IRCCS, Rome, Italy.ORCID https://orcid.org/0000-0003-2481-5354
Franco ScaldaferriCEMAD-Fondazione Policlinico Gemelli IRCCS, Rome, Italy.ORCID https://orcid.org/0000-0001-8334-7541
Salvo LeoneAMICI Onlus, Associazione nazionale per le Malattie Infiammatorie Croniche dell'Intestino, Milan, Italy.
Enrica PrevitaliAMICI Onlus, Associazione nazionale per le Malattie Infiammatorie Croniche dell'Intestino, Milan, Italy.
Gionata FiorinoIBD Unit, Department of Gastroenterology and Digestive Endoscopy, San Camillo-Forlanini Hospital, Rome, Italy.ORCID https://orcid.org/0000-0001-5623-2968
Flavio CaprioliDepartment of Pathophysiology and Transplantation, Università degli Studi di Milano, Milan 20135, Italy.
Massimo Claudio FantiniDepartment of Medical Science and Public Health, University of Cagliari, Cagliari, Italy.
Simona RadiceDepartment of Gastroenterology & Endoscopy, IRCCS San Raffaele Hospital & Vita-Salute San Raffaele University, Milan 20132, Italy.
Greta LorenzonDepartment of Surgery, Oncology and Gastroenterology (DiSCOG), University of Padova, Padova 35128, Italy.
Elisa SchiavoniCEMAD-Fondazione Policlinico Gemelli IRCCS, Rome, Italy.
Nurse IGIBD Group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Inflammatory bowel diseases (IBDs) are chronic conditions that negatively influence the quality of life of affected patients. IBD nurses are an essential part of the multidisciplinary team managing patients with IBD. Given the lack of studies evaluating the role of IBD nurses, this study aimed to assess the patient's perspective regarding the role and competencies of the IBD nurse. Methods: A cross-sectional study was conducted between October and November 2024, using an online survey. The main inclusion criteria were being over 18 years old and having an established diagnosis of IBD. Subjects who fulfilled these criteria were invited to participate via email from the Italian IBD organization AMICI ITALIA. The questionnaire used for the survey, developed ad-hoc according to N-ECCO guidelines, was structured into 3 thematic sections: demographic and clinical information, patient-nurse interaction, and nursing competencies. Results: Most patients (69.7%) reported excellent relationships with their IBD nurse, emphasizing the importance of trust in disease management. Those who could identify their dedicated IBD nurse expressed higher satisfaction regarding empathy, communication, and the nurse's influence on their treatment journey compared to those who could not identify their nurse, illustrating the positive impact the nurse had on their care. Similarly, patients who recognized their nurse demonstrated greater confidence in the nurse's competence. Conclusion: This study emphasized the crucial role of the IBD nurse in the care journey of IBD patients. Although most patients reported an excellent relationship with their IBD nurse, many still struggle to identify their nurse. Larger studies are needed to confirm these findings further.

Indexed as

inflammatory bowel diseasesnurse–patient relationsnursingpatient satisfactionquality of health care

Identifiers

PMID41323480
PMCPMC12659860

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.