ArticleBMC medical informatics and decision making2025
Design and evaluation patient portal for patients with HTLV-1.
Article in BMC medical informatics and decision making, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient portals are now considered an integral part of medical care. The aim of this study was to design and evaluate a patient portal for individuals with human T-lymphotropic virus type 1 (HTLV-1) to provide information about their health status.
methodsThis practical cross-sectional study was conducted by using the Delphi technique at Mashhad University of Medical Sciences (Northeast Iran). First, an open-ended systematic review was conducted in the PubMed, Scopus, Embase, and Web of Science databases. A questionnaire about the functions of the patient portal was then developed based on the systematic reviews. A multidisciplinary working group carried out the Delphi technique with 20 participants from the fields of neurology, immunology, health information management, and medical informatics. The patient portal was designed based on the features identified in the Delphi session. For evaluation, the researchers visited the HTLV-1 clinic and selected 20 patients based on available samples. These patients then evaluated the patient portal using the System Usability Scale (SUS), while six professionals evaluated the portal using the Nielsen heuristic questionnaire.
resultsThe developed portal includes six structural functions: Home Page, Patient Profile, Care Team, Educational Materials, Contact Us, and About Us. The key features identified in the survey questionnaire completed by patients were appointment reminders (93.3%), appointment scheduling (90%), requests for medication prescriptions (83.3%), and viewing test results (70%), among other things. The SUS results showed that users found the portal user-friendly, useful, and efficient. The final SUS score was 75.77%, indicating acceptable system usability.
conclusionThe development and evaluation of the HTLV-1 patient portal demonstrated its potential to enhance patient engagement and streamline healthcare management. By incorporating key features such as appointment scheduling, prescription requests, and access to test results, the portal addresses essential patient needs. Future improvements should focus on refining the portal based on user feedback and evaluating its long-term impact on patient care.
Indexed as
Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.