Evidence map›Paper›PMID 41387017›Full record

ArticleBMJ open2025

Patient perspectives on the usability and content validity of the assessment of burden of chronic conditions tool for post-COVID in the Netherlands: a qualitative study.

Valerie H J Debie, Loraine H L Peters, Onno C P van Schayck, Jako S Burgers, Ramon P G Ottenheijm, Annerika H M Gidding-Slok

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Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Valerie H J DebieCare and Public Health Research Institute (CAPHRI), Department of Family Medicine, Maastricht University, Maastricht, Netherlands v.debie@maastrichtuniversity.nl.ORCID http://orcid.org/0009-0004-1448-2837
Loraine H L PetersCare and Public Health Research Institute (CAPHRI), Department of Family Medicine, Maastricht University, Maastricht, Netherlands.ORCID http://orcid.org/0009-0009-6712-3180
Onno C P van SchayckCare and Public Health Research Institute (CAPHRI), Department of Family Medicine, Maastricht University, Maastricht, Netherlands.
Jako S BurgersCare and Public Health Research Institute (CAPHRI), Department of Family Medicine, Maastricht University, Maastricht, Netherlands.
Ramon P G OttenheijmCare and Public Health Research Institute (CAPHRI), Department of Family Medicine, Maastricht University, Maastricht, Netherlands.
Annerika H M Gidding-SlokCare and Public Health Research Institute (CAPHRI), Department of Family Medicine, Maastricht University, Maastricht, Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPost-COVID syndrome manifests with a diverse array of symptoms for which no standard care plan currently exists. Many questions were raised by patients, which underscored the need for a validated patient-reported outcome measure (PROM). Therefore, a post-COVID module was developed to be included in the Assessment of Burden of Chronic Conditions (ABCC-) tool. The ABCC-tool evaluates and visualises the perceived physical, emotional and social burden of one or multiple chronic disease(s) using a balloon diagram and aims to facilitate person-centred care and structured discussions between patients and healthcare professionals. This study explores the patients' perspective on the content of the ABCC-tool for post-COVID and the tool's usability in a home-based setting.

methodsAll patients who completed the ABCC-tool for post-COVID were invited for an online semi-structured interview. We selected post-COVID patients who had used the tool in the past three months. Interviews were audio recorded and analysed using a thematic approach with Atlas.ti version 23.

resultsNineteen post-COVID patients (10 males, mean age 56) were interviewed between May and August 2024. The tool was regarded as user-friendly, and patients indicated they would use the tool again in the future. Patients valued the tool's broad range of topics, some of which are often overlooked in standard healthcare consultations. The tool was comprehensible and relevant according to all patients. The balloon diagram was easy to understand, but a legend explaining the colours of the balloons was preferred. Other suggestions for improvement included adding open-text fields and periodic reminders to increase usability and adding long-term data.

conclusionsThe ABCC-tool is a promising instrument for post-COVID patients, offering a structured way to monitor and communicate experienced burden in addition to standard healthcare consultations. Refinements addressing usability and comprehensiveness are recommended to facilitate its integration into clinical practices.

Indexed as

Cost of IllnessCOVID-19Patient Reported Outcome MeasuresAdultAgedChronic DiseaseFemaleHumansMaleMiddle AgedNetherlandsPost-Acute COVID-19 SyndromeQualitative ResearchReproducibility of ResultsSARS-CoV-2Surveys and QuestionnairesChronic DiseasePatient Reported Outcome MeasuresPost-Acute COVID-19 Syndrome

Identifiers

PMID41387017
PMCPMC12706107

What Socratic holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.