Evidence mapPaperPMID 41524808Full record

ArticleWiener klinische Wochenschrift2026

The Austrian MS database and the Austrian MS cohort : A national effort towards data harmonization and prospective data collection.

Gabriel Bsteh, Fabian Föttinger, Markus Ponleitner, Klaus Berek, Franziska Di Pauli, Bettina Heschl, Sebastian Wurth, Florian Deisenhammer, Christian Enzinger, Thomas Berger and 3 more

Abstract read
In one paragraph

Article in Wiener klinische Wochenschrift, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Gabriel BstehDepartment of Neurology, Medical University of Vienna, Vienna, Austria. gabriel.bsteh@meduniwien.ac.at.ORCID http://orcid.org/0000-0002-0825-0851
Fabian FöttingerDepartment of Neurology, Medical University of Vienna, Vienna, Austria.
Markus PonleitnerDepartment of Neurology, Medical University of Vienna, Vienna, Austria.
Klaus BerekDepartment of Neurology, Medical University of Innsbruck, Innsbruck, Austria.
Franziska Di PauliDepartment of Neurology, Medical University of Innsbruck, Innsbruck, Austria.
Bettina HeschlDepartment of Neurology, Medical University of Graz, Graz, Austria.
Sebastian WurthDepartment of Neurology, Medical University of Graz, Graz, Austria.
Florian DeisenhammerDepartment of Neurology, Medical University of Innsbruck, Innsbruck, Austria.
Christian EnzingerDepartment of Neurology, Medical University of Graz, Graz, Austria.
Thomas BergerDepartment of Neurology, Medical University of Vienna, Vienna, Austria.
Michael KhalilDepartment of Neurology, Medical University of Graz, Graz, Austria. michael.khalil@medunigraz.at.
Harald HegenDepartment of Neurology, Medical University of Innsbruck, Innsbruck, Austria. harald.hegen@i-med.ac.at.
Austrian Multiple Sclerosis Database, Austrian MS cohort study group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMultiple sclerosis (MS) is treated with various disease-modifying therapies (DMTs) with differing efficacy and risks, yet the disease course varies markedly within and between individuals. Defining optimal treatment strategies through randomized trials is impractical because of the required sample sizes, costs and long follow-up. Large multicenter registries and prospective observational cohorts are therefore essential but demand harmonized, standardized, user-friendly data capture with rigorous quality control and data protection.

objectiveThis project aims to establish standardized, nationwide MS data collection in Austria.

methodsThe project consists of five key components: (i) harmonization of data collection, (ii) creation of infrastructure for data sharing, (iii) retrospective harmonized data collection (Austrian MS Database, AMSD), (iv) prospective harmonized data collection (Austrian MS Cohort, AMSC) and (v) aggregated analyses.

resultsA comprehensive set of harmonized common data elements (CDE) comprising clinical and paraclinical data was developed and a common data collection infrastructure was generated using the web-based Research, Documentation, and Analysis platform (webRDA), an innovative data capture, processing and analysis system provided by the Medical University of Vienna offering pseudonymized storage of data supported by a robust permissions system fulfilling legal data protection and ethical requirements. The AMSC is set up as a standardized prospective collection of demographic, clinical, epidemiological, psychosocioeconomic, magnetic resonance imaging (MRI), and optical coherence tomography (OCT) data as well as body fluids.

conclusionThe AMSD and AMSC will facilitate the evidence-based development of prognostic biomarkers, individualized therapy strategies and treatment sequences based on a high-quality, population-based dataset of more than 8000 people with MS.

Indexed as

Databases, FactualData CollectionMultiple SclerosisRegistriesAustriaCohort StudiesHumansProspective StudiesCommon data elementData collectionData processingInfrastructureMultiple sclerosis

Identifiers

PMID41524808
PMCPMC13375655

What Socratic holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.