Evidence map›Paper›PMID 41533094›Full record

ArticleBundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz2026

[Patient participation in health research in Germany : Current status and future prospects].

Lena Oster, Avin Hell, Ines Moegling, Anna Levke Brütt

Abstract readEnglish Abstract
In one paragraph

Article in Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Lena OsterInstitut und Poliklinik für Medizinische Psychologie, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland.
Avin HellHubertus Wald Tumorzentrum, Universitäres Cancer Center Hamburg (UCC Hamburg), Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland.
Ines MoeglingHubertus Wald Tumorzentrum, Universitäres Cancer Center Hamburg (UCC Hamburg), Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland.
Anna Levke BrüttInstitut und Poliklinik für Medizinische Psychologie, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland. a.bruett@uke.de.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In order to make health and healthcare research patient centred, the perspectives and experiences of patients should be systematically taken into account. Patient involvement means that those affected contribute to the research process not as research subjects, but as experts with lived experience of illness and healthcare. How this contributes to patient-centredness is described by means of three aspects: patient involvement can help to ensure that (1) relevant research topics are addressed, (2) research processes are designed to suit participants, and (3) results are discussed together with patients.In Germany, research funders and patient organizations are promoting the implementation of patient involvement. Both patients and researchers report positive experiences but also challenges. Research institutions can establish sustainable structures for this, as exemplified by the University Cancer Center Hamburg, where patients participate in advisory boards and act as ambassadors in cancer research.Effective implementation requires not only appropriate structures but also knowledge. Practical guidelines, examples, and training opportunities can provide a basis for this. Equally important is transparent reporting in order to critically reflect on involvement processes. Scientific evaluation can examine how and under which conditions patients can meaningfully contribute to research projects and what impacts involvement has on patients, researchers, and patient centeredness as well as on the process and the results of research projects.

Indexed as

Biomedical ResearchHealth Services ResearchPatient-Centered CarePatient ParticipationForecastingGermanyHumansCitizen participationHealth services researchParticipatory researchPatient and public involvementPatient centricity

Identifiers

PMID41533094
PMCPMC12852197

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.