ArticleBundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz2026
[Patient participation in health research in Germany : Current status and future prospects].
Article in Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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4 authors.
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Abstract
In order to make health and healthcare research patient centred, the perspectives and experiences of patients should be systematically taken into account. Patient involvement means that those affected contribute to the research process not as research subjects, but as experts with lived experience of illness and healthcare. How this contributes to patient-centredness is described by means of three aspects: patient involvement can help to ensure that (1) relevant research topics are addressed, (2) research processes are designed to suit participants, and (3) results are discussed together with patients.In Germany, research funders and patient organizations are promoting the implementation of patient involvement. Both patients and researchers report positive experiences but also challenges. Research institutions can establish sustainable structures for this, as exemplified by the University Cancer Center Hamburg, where patients participate in advisory boards and act as ambassadors in cancer research.Effective implementation requires not only appropriate structures but also knowledge. Practical guidelines, examples, and training opportunities can provide a basis for this. Equally important is transparent reporting in order to critically reflect on involvement processes. Scientific evaluation can examine how and under which conditions patients can meaningfully contribute to research projects and what impacts involvement has on patients, researchers, and patient centeredness as well as on the process and the results of research projects.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.