Evidence map›Paper›PMID 41583972›Full record

ArticlePatterns (New York, N.Y.)2026

Mainzelliste: Ten years of pseudonymization, record linkage, and informed consent management.

Galina Tremper, Torben Brenner, Moanes Ben Amor, Tobias Kussel, Martin Lablans

Abstract read
In one paragraph

Article in Patterns (New York, N.Y.), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Galina TremperFederated Information Systems, German Cancer Research Center (DKFZ), Heidelberg, Germany.
Torben BrennerFederated Information Systems, German Cancer Research Center (DKFZ), Heidelberg, Germany.
Moanes Ben AmorFederated Information Systems, German Cancer Research Center (DKFZ), Heidelberg, Germany.
Tobias KusselFederated Information Systems, German Cancer Research Center (DKFZ), Heidelberg, Germany.
Martin LablansFederated Information Systems, German Cancer Research Center (DKFZ), Heidelberg, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Record linkage and pseudonymization are crucial tasks in collaborative biomedical research. Data for a patient are rarely stored in one place and therefore often need to be linked and integrated across multiple institutions. Mainzelliste is an open-source software solution designed to solve these challenges by providing a comprehensive and flexible toolkit for pseudonymization, record linkage, and consent management. It supports a variety of pseudonyms, record linkage methods, and modular, informed patient consents. A highly flexible REST application programming interface (API) allows tight integration into existing applications and workflows. Since its initial release in 2015, Mainzelliste has evolved into a vibrant open-source software solution "by researchers, for researchers" including a user-friendly graphical interface, support for HL7 FHIR for consent and patient data, and record linkage based on secure multi-party computation, thereby supporting secure and efficient biomedical research.

Indexed as

informed consent managementpseudonymizationrecord linkage

Identifiers

PMID41583972
PMCPMC12827741

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.