Evidence map›Paper›PMID 41629201›Full record

ArticleJournal of intellectual disability research : JIDR2026

'Name It to Tame It': Dementia Diagnostic Procedure in Austrian Care Facilities for People With Intellectual Disabilities. An Interview Study.

Annalisa La Face, Dominik Pendl, Barbara Gasteiger-Klicpera

Abstract read
In one paragraph

Article in Journal of intellectual disability research : JIDR, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Annalisa La FaceUniversity of Graz, Institute of Education Research and Teacher Education, Inclusive Education Unit, Graz, Austria.ORCID 0000-0003-2513-2512
Dominik PendlUniversity of Graz, Institute of Education Research and Teacher Education, Inclusive Education Unit, Graz, Austria.ORCID 0000-0003-1509-7151
Barbara Gasteiger-KlicperaUniversity of Graz, Institute of Education Research and Teacher Education, Inclusive Education Unit, Graz, Austria.ORCID 0000-0002-1101-5457

Funding

Styrian Chamber of LabourUniversity of Graz
6 · The paper itself

Abstract

backgroundDespite the growing relevance of dementia in people with intellectual disabilities, there are currently no national recommendations in Austria to inform diagnostic protocols within care facilities. In order to gain a state-of-the-art understanding of the issue, the aim of this study was to map out the process currently followed by formal caregivers when they suspect a person in their care has dementia.

methodWe conducted 30 interviews with formal caregivers working in three care facilities for people with intellectual disabilities in Styria, an Austrian province. The interviews were transcribed and analysed using structured qualitative content analysis.

resultsIn order to notice signs of early dementia and start the diagnostic process, a long-term relationship between formal caregivers and the person with intellectual disabilities appears to be crucial. Standardised observational instruments for monitoring changes were used by only three formal caregivers. In 19 out of 30 cases, no diagnostic assessment was carried out, even though dementia was suspected.

conclusionsTo uphold the right to health for older adults with intellectual disabilities, policies and recommendations must be established in Austria to ensure timely and accurate dementia diagnoses. This requires the introduction of standardised observational and documentation tools, clear diagnostic pathways and specialist diagnostic centres.

Indexed as

CaregiversDementiaIntellectual DisabilityAdultAgedAustriaFemaleHumansMaleMiddle AgedQualitative Researchdementiadiagnosisformal caregiversintellectual disabilityinterview study

Identifiers

PMID41629201
PMCPMC13065438

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.