Evidence map›Paper›PMID 41639708›Full record

ArticleResearch involvement and engagement2026

Who CaREs - We do: Development of a community and researcher engagement program in translational medicine.

Evangelia Bishop, Gabriella Tikellis, Catherine Carmichael, Narelle S Cox, Tiffany Rushen, Anna Steiner, Ken Young, Jurie Tashkandi, Pia Campagna, Arwel W Jones and 1 more

Abstract readLetter
In one paragraph

Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Evangelia BishopCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Gabriella TikellisCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Catherine CarmichaelCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Narelle S CoxCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Tiffany RushenCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Anna SteinerCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Ken YoungCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Jurie TashkandiCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Pia CampagnaCommunity and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.
Arwel W Jones *Community and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia. arwel.jones@monash.edu.
Karen Alt *Community and Researcher Engagement Program, School of Translational Medicine, Monash University, Level 6 Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere are increasing calls from research funders for the inclusion of community members at all stages of the research cycle. However, meaningful community engagement in translational research may be challenging to achieve, establish, and maintain. MAIN TEXT: The Community and Researcher Engagement (CaRE) program for translational research was developed at an Australian University in response to this need. In this manuscript, we provide an overview of the CaRE program including its governance, structure and underlying principles. In addition, we detail the community and researcher partnerships (pairing service) which have been the core activity of the program since its launch in 2021. We further report on the characteristics of people who have engaged with the program, as well as their experience and satisfaction over a three-year period.

conclusionThe development of the CaRE program provides an important contribution to the evolving landscape of community engagement in translational research.

Identifiers

PMID41639708
PMCPMC12870369

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.