ArticleDevelopmental medicine and child neurology2026
Seizures in children with Dravet syndrome in extreme heat: A qualitative study of parental perspectives.
Article in Developmental medicine and child neurology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Seizures in children with Dravet syndrome in extreme heat: A qualitative study of parental perspectives.Developmental medicine and child neurology · 2026Article
- Temperature-related seizures as a daily challenge in Dravet syndrome: Beyond fevers.Developmental medicine and child neurology · 2026Article
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Authors and funding
9 authors.
Funding
Abstract
aimTo describe parental perspectives on how heatwaves and high ambient temperatures influence seizure activity in children and adolescents with Dravet syndrome and to examine coping strategies families employ.
methodA descriptive qualitative study was conducted using purposeful, non-probabilistic sampling. Nineteen parents of children and adolescents with Dravet syndrome were interviewed in-depth. Inductive thematic analysis was performed using MAXQDA software.
resultsThree themes emerged: (1) seizure worsening with high ambient temperatures; (2) additional temperature-related triggers; and (3) parental coping strategies. Parents reported that heatwaves and high temperatures increased seizure frequency, intensity, and duration. Abrupt temperature shifts and water exposure (e.g. swimming) were cited as additional triggers. Parents used thermoregulatory measures-light clothing, cool indoor environments, restricted outdoor activity-and empirical antipyretic use to mitigate seizure risk.
interpretationThis research highlights the aggravating role of heatwaves and how parents implement thermoregulation strategies. These findings inform clinical guidance for managing Dravet syndrome during extreme heat, and emphasize the need for further research into the prevention of heat-related seizures.
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Registered trials
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