Evidence map›Paper›PMID 41808155›Full record

SynthesisBMC palliative care2026

Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis.

Sheng He, Kaibo Shen, Baolin Huang, Ju Zhang

Abstract readSystematic Review
In one paragraph

Synthesis in BMC palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Sheng HeDepartment of Public Health and Nursing, Hangzhou Normal University, 2318 Yuhangtang Road, Hangzhou City, Zhejiang Province, 311121, China.
Kaibo ShenDepartment of Public Health and Nursing, Hangzhou Normal University, 2318 Yuhangtang Road, Hangzhou City, Zhejiang Province, 311121, China.
Baolin HuangDepartment of Public Health and Nursing, Hangzhou Normal University, 2318 Yuhangtang Road, Hangzhou City, Zhejiang Province, 311121, China.
Ju ZhangDepartment of Public Health and Nursing, Hangzhou Normal University, 2318 Yuhangtang Road, Hangzhou City, Zhejiang Province, 311121, China. ora_zhang2024@hznu.edu.cn.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo systematically synthesize the experiences of parents of children with life-limiting illnesses (LLIs) in pediatric advance care planning (pACP), extract core perceptions and influencing factors, and provide practical guidance to optimize the clinical implementation of pACP.

methodsA systematic search was conducted in the Cochrane Library, PubMed, Embase, CINAHL, Web of Science, Scopus, China National Knowledge Infrastructure (CNKI), and Chinese Biomedical Literature Database (CBM) for qualitative studies related to parental involvement in pACP for children with LLIs. The search period was from database inception to April 2025. The aggregative meta-synthesis method was employed for data analysis and synthesis.

resultsA total of nine qualitative studies were included, from which 33 themes were identified and structured into ten themes and corresponding subthemes. These themes and subthemes were further synthesized into three core findings: (1) Behavioral coping patterns of parents in pACP; (2) Parental perceptions and experiences regarding the value of pACP; and (3) Challenges and barriers encountered by parents in engaging with pACP.

conclusionTo facilitate the effective implementation of pACP, it is crucial to respect children’s preferences, address parental decision-making needs, and enhance palliative care services along with educational and support systems for pACP. These efforts will improve the acceptability and practical application of pACP in pediatric care.

Indexed as

Advance Care PlanningParentsPediatricsChildDecision MakingHumansQualitative ResearchExperienceLife-limiting illnessMeta-aggregationPediatric advance care planningQualitative study

Identifiers

PMID41808155
PMCPMC13088600

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.