Evidence map›Paper›PMID 41844926›Full record

ArticleJournal of cancer survivorship : research and practice2026

"I had to work it out for myself": opportunities for primary care to fill a void for early-onset breast cancer survivors.

Sarah J Fadem, Anna Maniaci, Katie A Devine, Denalee M O'Malley, Jennifer R Hemler, Gianna Holover, Shawna V Hudson, Benjamin F Crabtree

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05400941 (Adapting and Implementing Evidence-based Breast Cancer Follow-up in Primary Care), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05400941 naenrolling by invitationnot on this map

Adapting and Implementing Evidence-based Breast Cancer Follow-up in Primary Care

TypeinterventionalSponsorRutgers, The State University of New JerseyRan2024 to 2026Enrolled910ConditionsCancer, Breast, Health Care UtilizationArmsPractice Led Intervention
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Trial
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Sarah J FademDepartment of Family Medicine and Community Health, Research Division, Rutgers Robert Wood Johnson Medical School, 303 George St., Matrix Plaza I Building, 3rd Floor, New Brunswick, NJ, 08901, USA. sjf158@rwjms.rutgers.edu.
Anna ManiaciDepartment of Family Medicine and Community Health, Research Division, Rutgers Robert Wood Johnson Medical School, 303 George St., Matrix Plaza I Building, 3rd Floor, New Brunswick, NJ, 08901, USA.
Katie A DevineRutgers Cancer Institute of New Jersey, 195 Little Albany St., New Brunswick, NJ, 08901, USA.
Denalee M O'MalleyDepartment of Family Medicine and Community Health, Research Division, Rutgers Robert Wood Johnson Medical School, 303 George St., Matrix Plaza I Building, 3rd Floor, New Brunswick, NJ, 08901, USA.
Jennifer R HemlerDepartment of Family Medicine and Community Health, Research Division, Rutgers Robert Wood Johnson Medical School, 303 George St., Matrix Plaza I Building, 3rd Floor, New Brunswick, NJ, 08901, USA.
Gianna HoloverDepartment of Family Medicine and Community Health, Research Division, Rutgers Robert Wood Johnson Medical School, 303 George St., Matrix Plaza I Building, 3rd Floor, New Brunswick, NJ, 08901, USA.
Shawna V HudsonDepartment of Family Medicine and Community Health, Research Division, Rutgers Robert Wood Johnson Medical School, 303 George St., Matrix Plaza I Building, 3rd Floor, New Brunswick, NJ, 08901, USA.
Benjamin F CrabtreeDepartment of Family Medicine and Community Health, Research Division, Rutgers Robert Wood Johnson Medical School, 303 George St., Matrix Plaza I Building, 3rd Floor, New Brunswick, NJ, 08901, USA.

Funding

Diversity Supplement to Adapting and implementing evidence-based breast cancer follow-up in primary careR01CA257197 · NCI · RUTGERS BIOMEDICAL AND HEALTH SCIENCES · PI HUDSON, SHAWNA V. · 2021 to 2025
$3.7M
NJ ACTS: A Platform for Translational Science in New Jersey: CTSA K12 Program at Rutgers, Biomedical Health SciencesK12TR004788 · NCATS · RUTGERS BIOMEDICAL AND HEALTH SCIENCES · PI John R. Chan, Ethan A Halm · 2024 to 2026
$2.8M
NCATS NIH HHS K12 TR004788NCATS NIH HHS K12TR004788NCI NIH HHS R01 CA257197NCI NIH HHS R01CA257197
6 · The paper itself

Abstract

purposeBreast cancer incidence in women under 50 (early-onset) is steadily increasing. Primary care clinicians can play a role in managing late and long-term treatment effects for these women, who face decades of survivorship and are coping with a life-stage discordant illness. This study describes early-onset breast cancer survivors' experiences with primary care.

methodsSemi-structured interviews were conducted with early-onset breast cancer survivors (N = 16). Iterative, inductive thematic analysis was used to identify patterns in experiences with primary care.

resultsParticipants were on average 58.4 years old and 17 years post-diagnosis (M

conclusionsEarly-onset breast cancer survivors navigate survivorship in a fragmented healthcare system and bear the burden of coordinating their own care. Dynamic information support tools are needed to empower survivors to communicate their cancer history and connect symptoms to cancer-related issues in primary care settings. IMPLICATIONS FOR CANCER SURVIVORS: As clinical continuity is limited over decades of survivorship, early-onset cancer survivors need resources that bridge the gap between their cancer history and current primary care management.

trial registrationRegistered with ClinicalTrials.gov on June 2, 2022: NCT05400941, https://clinicaltrials.gov/study/NCT05400941.

Indexed as

Early-onset breast cancerPatient-provider communicationPrimary careSurvivorship

Identifiers

PMID41844926
PMCPMC13202708

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.