Evidence mapPaperPMID 41855498Full record

ArticleJMIR research protocols2026

Public Engagement Strategies in Digital Health Ethics: Protocol for a Scoping Review.

Stella Namuganza, Mariacarla Gadebusch Bondio, Philipp Kellmeyer

Abstract read
In one paragraph

Article in JMIR research protocols, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Stella NamuganzaInstitute for Medical Humanities, University Hospital Bonn, Bonn, Germany.ORCID http://orcid.org/0009-0004-0416-9791
Mariacarla Gadebusch Bondio *Institute for Medical Humanities, University Hospital Bonn, Bonn, Germany.ORCID http://orcid.org/0000-0002-5888-3059
Philipp Kellmeyer *Data and Web Science Group, School of Business Informatics and Mathematics, University of Mannheim, B6, 26, Mannheim, D-68159, Germany, 49 621181 ext 2422.ORCID http://orcid.org/0000-0001-5538-373X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The ethical, legal, and social issues accompanying the latest advancements in digital health technologies highlight the need to involve the public in their design, development, and deployment to align with societal values and needs. For public engagement to be meaningful, it should be participatory, inclusive, and scalable. However, studies in participatory digital health do not characterize public engagement strategies in terms of scalability, representativeness, and the extent of participation. Moreover, no reviews have examined how ethical debates shape the design and implementation of public engagement strategies in digital health ethics. Objective: The objectives of the planned study based on this protocol are to (1) identify approaches used to engage the public in digital health ethics; (2) characterize approaches used in digital health ethics in terms of scalability, representativeness, and extent of participation; and (3) explore the role of ethics in the design and implementation of participatory methods. Methods: The research will be undertaken using the Joanna Briggs Institute scoping review method. To identify relevant literature, the academic databases PubMed, ScienceDirect, IEEE Xplore, and Web of Science will be searched for articles published from January 1, 2015, to November 30, 2025. All retrieved papers will be uploaded to the Rayyan software. Duplicates will be removed, and subsequently, 2 reviewers will independently screen titles and abstracts, followed by full-text screening using a hybrid verification model. Data will be extracted on a spreadsheet, with rows representing individual studies and columns capturing categories of extracted information. Results: Currently, the search has yielded 1352 articles; at the title and abstract screening phase, 1291 (95.5%) articles have been excluded and 61 (4.5%) have been included. Anticipated results are the number of studies, bibliographic details of the studies (ie, author, publication year, journal, and country), participant characteristics, digital health technology type, participatory methods, and media, as well as the embodiment of participatory, representative, and scalable characteristics in engagement methods and how ethical debates influence the design of public engagement strategies. Conclusions: This protocol outlines methodology for a scoping review mapping the characteristics and ethics of public engagement methods to improve participatory and ethically responsible innovation in digital health.

Indexed as

Community ParticipationDigital HealthHumansResearch DesignScoping Reviews as TopicAIartificial intelligencedigital healthdigital health ethicsparticipationpublic engagementrepresentativenessscalability

Identifiers

PMID41855498
PMCPMC13002162

What Socratic holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.